An Eyeball Update…and Unfortunate Addendum

(Title image: Photo by Anastasiya Badun on Unsplash)

Last Wednesday, I had a follow-up appointment with my ophthalmologist regarding the visual migraine auras I’d experienced during the second half of last year. [Read through to the end to see what happened a few days later on Sunday.]

I had gone to see her on November 22nd after the aura frequency had increased, and at that point, imaging of my eyes revealed little hemorrhages in both eyeballs, leading my doc to fear that something was exerting pressure, eliciting auras and busting little blood vessels.

And by “something”, she meant possibly a cause as serious as a tumor.

This time around, however, the hemorrhages were gone, healed on their own. As I mentioned in a previous post, my auras had ceased too. And even my eyeballs were not looking as parched as they had before.

Everything had improved. How often does that happen?

While I expected some improvement by virtue of the fact that I was no longer experiencing visual disturbances, I was a little surprised by the complete reversal. My eyeballs looked better than they had even during my first appointment with the eye doctor some months ago.

So we talked about the effects that stress might have had on me, since I had incorporated all sorts of anti-anxiety measures. My opthalmologist is very supportive of meditation and whatever else it takes to calm oneself down. She was very relieved that there was such a marked improvement.

And this made me think about how the extra effort I’d put into being mindful, pausing during the day, increasing meditation time and the like had really paid off. Simply taking the time to look around and notice how I felt, to evaluate the pressures that I was under, to be aware and present…all of this helped me realize where there were things that I could do to change what was happening.

The concept of self-efficacy comes to mind here. Because after going through a cancer journey where everything seems out of my hands, it’s refreshing to have the experience of being able to get a positive response from lifestyle changes.

And, yes, I have to admit: I am making assumptions here. I am assuming that in fact, the visual migraine auras were caused by a pile-on of factors that included anxiety, grief and depression. I am assuming that by being more self-aware of what I was going through, engaging in holistic methods for calming myself and showing self-compassion, even the increased consumption of theobromine, all worked together to help me get a handle on the emotional storm that I’d been facing. I could be completely wrong.

But you know what? It’s not beyond the realm of possibility that all these things were exactly what I needed.

Perhaps it’s not as simplistic as taking deeper breaths. But those self-soothing techniques do not hurt.

Of course, the trick now is to not get complacent. Life is still tough, and I know that I have some challenges coming up this year. Even the greatest techniques do no good if you start cutting corners.

But after the uncertainty of last year, the pain and the loss, once again I get the satisfaction of knowing that as difficult as it seems to be, I can survive this.

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ADDENDUM

The trick now is to not get complacent. I feel like I’m eating my words.

I had felt very positive when I wrote the first draft of this post last Friday. But perhaps after almost two months of no auras, I might have assumed that I was done with them.

Yesterday (Sunday), while driving in the car, I experienced another aura. It was “milder” and a little shorter than most, but *groan* it was still an aura. My heart sank.

A few days ago I had noticed that I was experiencing that involuntary sighing reflex again. I didn’t think much of it because, hey, I had everything under control, right? I guess not.

So today my mind is more unfocused, possibly additional stress from life or anxiety over the fact that I just had another aura after things were going so well. Honestly, I don’t know which. All I know is that auras are not going to simply disappear from my life altogether. I guess I should have expected a relapse.

Darn it.

“It’s Not a Toomah”: My Aura Theory

(Title image: Photo by Daniele Levis Pelusi on Unsplash)

I’ve written in my blog that I was experiencing strange visual disturbances, most likely visual migraine auras. Note: I’ve never experienced migraine pain.

This is particularly worrisome for me as a survivor of triple-positive breast cancer, as there is a greater chance of that type of cancer metastasizing to the brain. Presumably, a growing tumor could restrict blood flow to areas of the brain that could result in me seeing strange things.

This was of great concern to my ophthalmologist. However, there was no pain associated with the auras, and pain would have been expected (but not necessarily required) if the auras were caused by a tumor.

There were other confounding variables, too. Since the summer of 2024, shortly before my father’s death, I had noticed that I was doing a lot of involuntary “sighing”. I’d experienced this type of sighing before, but this time it kept going for months, sometimes occurring a number of times an hour.

Naturally I googled it, and Dr. Google pointed out that excessive sighing was potentially associated with undiagnosed anxiety and depression. When I finally started writing out all my stressors, it because obvious to me that I had been far more deeply affected by what was going on in my life than I imagined.

So, after my appointments on Nov 22, I took time to grieve my father’s death, which I hadn’t done up to then. I thought I had accepted his passing and moved on, but clearly I hadn’t. I sought hugs and solace from family members and expressed what I was feeling.

My last aura was on Nov 29th. After that, along with allowing space for grief, I expanded my time in meditation, added up to an hour of breathwork a day and even included a daily cup of ceremonial-grade cacao (for the theobromine).

Mindfulness took a front seat. I paused at various points of the day to simply take deep breaths. I paid attention to what my body was doing and what thoughts were running through my mind. I made a concerted effort to show compassion to myself, more than I had in a long time.

The auras did not come back. As of this writing, it has been 45 days since the last aura. I had been having them once a week, and at their worst, a couple a week and even two on one evening.

I am well aware of the power of the mind. My educational background is in graduate-level psychology and I myself have experienced psychosomatic pain before. But honestly, I never expected to have such a striking response to anxiety/depression/grief.

I have searched for a good visual representation of an aura and it’s hard to find one that actually reflects what I was experiencing. It was something like this:

This is not exactly what it looks like for me, as some of my auras have been “thicker” and more “stained glass-like” in color, looking more zigzagged (as if the entire half-circle is made up of triangular pieces of vividly bright LED-like colors). Also, mine were gone within about 20 minutes.

That’s not an insignificant reaction to something that is going on in my head. My brain created those auras. That is amazing.

I should mention, I never had an MRI so technically a tumor cannot be ruled out. And neither can some other cause that I have not considered. However, the fact that my auras stopped after I put concerted effort into exploring my anxiety, acknowledging depression and recognizing that I was not okay with the pressures I was under suggests that it’s probably not a tumor.

Simple Meditations: Just a Piece of the Puzzle

Over the holiday break, I indulged myself by lassoing the family into working on a couple of jigsaw puzzles that I’d been saving. It was great! And if one of your goals for 2025 is to establish a mindfulness/meditation habit, here’s a simple practice to try if you, too, enjoy jigsaw puzzles.

Putting together the puzzle itself can be a great pasttime, offering good conversation and comraderie when working with others, or proving a shift of focus when constructing solo.

However, a large multi-piece puzzle can feel overwhelming at the start, even when you’re experienced and KNOW that eventually everything will click into place.

Ah, the joy of a finished puzzle. This one is from the Ravensburger Cozy Series and is a favorite of mine. Such a great experience putting it together with family!

So here’s my suggestion. Put your puzzle together. With whatever help you need, with whomever wants to participate, no matter how long it takes. Because for this, you want to start from the end.

Now, take apart of corner of the puzzle. It’s up to you about how many pieces you will want to remove, but choose a “comfortable” amount. Twenty? Fifty? Start with fewer pieces the first time you try this.

Once you’ve deconstructed that corner, put it back together. But this time, without the “stress” of doing the whole thing. This will be easy. You know that it’s only a handful of pieces. So simply enjoy the process.

The deconstructed corner turns putting the puzzle together into an meditative exercise. The focus is on contemplation, not completion. Enjoy the satisfaction of the clicking the pieces into place.

Perhaps find the edge pieces and create the frame, or simply build out the puzzle from the “raggedly” edges of the puzzle. There is no single “right” way to do this. What is important is that you breathe through the process. Picking up a piece, focusing on its qualities, seeing where it belongs. Either clicking it in or putting it back down and picking up another piece until you find the one that will go where you want it to.

Notice the sensations: the feeling of the puzzle piece in your hand, its shape and color, the texture of the interlocking sides, even the smell of the cardboard all work together to bring you back to the present moment.

The goal is contemplation, not completion. When you’ve put all the pieces together…do it again with another corner. You get the satisfaction of clicking the pieces into place without the fleeting stress of “omg, where do I start?” In turn, this provides you the opportunity to get absorbed in the process.

What a lovely way to meditate.

The Gift of Self-Care

(Title image: Photo by Ben White on Unsplash)

I’m popping in here with a little reminder to practice self-care over the remainder of this holiday season and springboard that care into the new year.

“I have had no time for self-care with everything going on!”, you may protest, but then, what do you imagine self-care to be?

If you believe commercials, it’s drinking red wine in the bathtub, eating ice cream from the container, using a face mask and getting your nails done at a salon. All while chanting, “BECAUSE I’M WORTH IT!”

In general, anyone who is perpetuating that type of “self-care” is trying to sell you something.

Journaling is an effective form of self-care and doesn’t require an expensive journal or pen, no matter what someone tries to sell you.
(Photo by Sixteen Miles Out on Unsplash)

Here are less expensive options that I feel align more closely with the true meaning of self-care:
* pausing during the day to take a few mindful breaths;
* noticing where you are (“Right now, I am in the kitchen doing the dishes, feeling the warm water and slipperiness of the soap on my hands”) to help calm racing thoughts;
* making a decision to choose a more nourishing food, eating slowly, savoring each bite;
* decreasing/eliminating alcohol — substitute a drink that looks festive (sprig of rosemary or a skewered piece of fruit added to sparkling water);
* staying consistent with exercise, or if time is squeezed, sticking in extra movement whereever you can (like doing 5 squats every time you go to the bathroom or a short yoga session right before bed);
*practicing gratitude, and if that’s hard, just finding something to appreciate.

And of course, taking time for a brief meditation whenever you can.

I think you get the idea.

Holiday self-care is not about buying things. It’s not about practicing an Instagram or TikTok version of indulgence. There are no photos to post and you don’t need a manual for it to be beneficial.

It is taking a break to drop down out of your thoughts and into the present moment. Be kind to your body and mind, get enough sleep and exercise to make yourself feel good. And importantly: release expectations of what you think the holiday should look like, how people should act, what you should be able to accomplish, even how you should feel about it. Find appreciation for whatever is going well.

I wish you a peaceful, positive start to 2025!

Cancer Took the Magic Away, Mindfulness Brought It Back

(Title image: Photo by Ethan Hoover on Unsplash)

And, no, I’m not talking about casting spells.

But I remember “life before cancer” and it felt different. There was a feeling that there was so much life left to live, so many plans still to execute.

I felt bulletproof. My own primary care doctor was impressed that I’d made it through so many years without ever having a major surgery (or any surgery, for that matter). I was looking foward to my future. My workouts were still tough and vigorous and I felt like I was going to age well.

Most importantly, life had a certain magic to it. It felt multidimensional and filled with possibilities, and even with the challenges that I’d had to face, I had hope that things would always get better.

Then I got hit by the locomotive that is cancer and everything ground to a halt. My world went gray and all those plans that I had for “the rest of my life” fell away as all my energy was focused on surviving the diagnosis, surviving chemo…and I didn’t see much past that.

For quite a while after diagnosis, I’d felt like I’d been tossed out by the side of the road.
(Photo by Sven Brandsma on Unsplash)

Emotionally, my life felt like a void. I was too afraid to even let hope in because of the fear of having it dashed to pieces.

It was like being out in the wilderness and calling for help but receiving none, not even an echo. Spiritually, it was the loneliest that I’d ever been.

I was no longer on the highway of life. I was sitting in the breakdown lane.

Forgive me if this sounds melodramatic. All my ‘anxiety chickens’ had come home to roost, so to speak. And I wasn’t handling it well.

I dragged myself around treatment like this…although about two weeks before my cancer surgery, I had started mindfulness meditation, encouraged by my radiation oncologist who suggested it as a non-pharmaceutical way of dealing with anxiety.

It was that little ‘peep’ of mindfulness that had I clung to, terrified, in the beginning, not really sure whether or not it was helping. But at least it was something warm at a point when I felt cold and abandoned.

I can honestly say that mindfulness and meditation were what gave me back the strength to persevere through tough times.
(Photo by Robin van Holst on Unsplash)

As time went on and I stubbornly refused to miss a day of meditation, that little break in the clouds became bigger. In this case, my obstinance was a blessing. Somewhere in the last almost-eight years, not even sure exactly when, something changed.

The fear and loneliness and bitterness crumbled away. Noticing how things were right now, how beautiful the world was when I chose to appreciate it, helped pull me out of the funk.

In our darkest moment we find our greatest strengths. I wish it weren’t like that, I wish there wasn’t a need to hit lowest lows in order to get the biggest spring back up. But I can say that if my life even before cancer had been easier, I would not have experienced the richness of existence as I do now.

Not everything is okay. In many ways, things are even harder and more frightening. But I can accept that and not feel bitter. My expectations have softened and I pause more often to ground myself, to notice that at this moment, I am safe.

And for this moment, I am at peace.

A Rock in a Bubbling Stream [Visualization]

(Photo by Hendrik Cornelissen on Unsplash)

There’s a lot going on in my family at this time, most importantly the transition of my father to in-home hospice care, signaling that a life chapter will be coming to a close. That’s one of those things that you know is going to happen but usually don’t want to think about.

It’s these kinds of changes that unsettle us the most because they’re significant shake-ups of life as we know it. In the case of my family, this change was not unexpected and yet it is still not easy.

The uncertainties associated with end-of-life issues can be unsettling.
(Photo by Pylyp Sukhenko on Unsplash)

But I can draw on my meditation practice and ability to stay present to accept things are they are now.

It helps to use a visualization in the midst of emotional upheaval. So I think of myself as being a rock in a rushing stream. You know, one of those rocks that sticks out about the water’s surface and might serve as a comfortable sunning place for a river turtle.

The rock sits still even thought there is a rushing tumult all about. The water parts around it and then rejoins on the opposite side, but the rock remains there, unmoving and unbothered.

The rock doesn’t hinder the flow but neither does it get carried away by it. And as it sits, so do I, observing and understanding and accepting everything that is going on around me. Not getting caught up in my head and taken away by thoughts.

Mindfulness meditation provides me with a stable rock from which I observe the tumult of life as it rushes by.
(Photo by Simon Berger on Unsplash)

There will come a time to grieve but now I focus on what is happening in the moment and how I can support my parents. There is gentle planning as I get more information about the situation. And always, taking deep breaths, feeling into my hands and feet, staying grounded. From this vantage point, I can clearly see what needs to be done today.

“This is what’s happening now. Tomorrow may be different, but at this point in time, I am here.”

So the coming weeks may bring shorter posts, perhaps a skipped one here or there. There will be much to do and it will all get done in time. Decisions will be made as they come up. Focus remains on each task at hand. Even if responsibilities come fast, I find a stable base in my practice that helps support a strong relationship with my family.

The river rushes relentlessly. But I know it’s there and expect the constant movement. Changes become familiar, fear drops away and I am comfortable where I sit, calm as I watch the waters flow past me and then continue onward.

Entering a Dimension of Calm

(Title image: Photo by Ksenia Makagonova on Unsplash)

One of the amazing “side effects” of meditation for me has been that the calm I experience while I’m on my meditation cushion has been leaking into the rest of my life.

This did not happen overnight. As a matter of fact, it took a number of years (I am currently on 7+ years of daily meditation). But through the ups and downs of my sessions, there’s been a wonderful build-up of grounding and calm.

Yes, I still get smacked with a powerful wave of anxiety from time to time. But recovery is quicker and I don’t feel like I’m being dragged under, disoriented.

The raw dimension is slippery and loud and agitated.
(Photo by Martin Adams on Unsplash)

What I have been feeling lately is that there is a dimensionality to how I experience the world. It’s like this: there is the raw world, which has lots of hard edges and bright lights–overexposed, washed out colors–and loud noises. That’s the world I used to live in exclusively and it felt like a whoosh flying at me and pulling me in, allowing no control over what was hitting me, nor much of a way to steer myself.

But now, I’ve transcended that dimension somewhat. I’ve found a much more grounded dimension, perhaps a more soothing shade–think “golden hour”. The colors are deeper, the pace is slower, the sounds are gentler, the edges are softer. In this dimension, I find my roots quickly, feeling my feet on the floor and connection to the earth, to what is stable and unchanging.

The calm dimension invites deep breaths and beckons us into the present moment.
(Photo by Jasper Boer on Unsplash)

Here, I hear my breath and feel the tingle in my hands. I notice when I’m clenching my jaw, furrowing my brow, hunching my shoulders. I am also aware of when the raw dimension starts pushing to the forefront and am able to prioritize creating a safe space so that I don’t leave myself exposed.

This may sound very woo-woo but I assure you it’s not. It’s very much down-to-earth and sensible. There is no otherworldly magic at work. Just the understanding that my nervous system needs to feel safe and stable, and that I can offer myself a protective shield not by running away, but by settling into where I am.

It is as if there is a comfy blanket that I draw around myself, and from there I sit and watch and process and, if necessary, deflect the things around me. This is the gift that consistent meditation along with mindfulness have given me, and it feels like for the first time I’m experiencing life the way it was meant to be lived. Not as something to dodge and weave around but something to grow with.

Favorite Calm Things: Snail’s House Ferret Rescue

(Title image: Photo by Steve Tsang on Unsplash)

[NOTE: I am not associated with nor do I get any kickbacks from writing about Snail’s House, Pirate Software or Heartbound (except for a sense of well-being) 🙂 ]

Continuing with my “Favorite Calm Things” series, I have found great pleasure in watching ferrets sleep.

Yes, Snail’s House Ferret Rescue stream (https://www.twitch.tv/ferretsoftware or ferrets.live) has a playtime about once a day where you can watch an amazing bunch of curious ferrets racing about, charging through tubes, sneaking off with little toys, play-fighting and pausing the chaos to indulge in a yummy snack. But in between these playtimes, I find great comfort in watching a large cage of about 15 or so ferrets (just a fraction of the actual ferret population there) cuddle together in hammocks and under mats and snooze away the 18-20 or so hours that they spend sleeping during a 24-hour period.

The cameras are always on. Full color overhead view during playtime and front nightvision as they sleep the rest of the time.

Photos of a selection of resident ferrets (more have already been added)

This ferret rescue is the forever home for these wiggly noodles, as the facility accepts ailing animals, rescues from bad situations, ferrets who can no longer be cared for by their owners and the like. These ferrets are provided with high quality food, nurturing environment, medical care and proper stimulation…but are never adopted out. Snail’s House is the loving home from which they will ultimately cross the rainbow bridge, comfortable until the end.

Faces like this are difficult to resist (this is not one of Snail’s House’s ferrets, but cute nonetheless).
(Photo by Nikolett Emmert on Unsplash)

This ferret rescue is the pet project of game developer PirateSoftware (https://www.twitch.tv/piratesoftware) led by Jason Thor Hall and exotic vet assistant (and artist) Shaye Rehmel. Due to Thor’s diligent planning and recent explosive success on both Twitch and YouTube, the rescue is ever-expanding, as of this writing home to about 42 ferrets. Ingeniously, Snail’s House is funded by ad revenue from the FerretSoftware stream on Twitch. If you want to support them, all you have to do is tune in to the stream.

This is the only stream where the viewers get excited when ads come on because they know the benefit that advertising funds bring to the furry noodles.

We, the viewers, are the beneficiaries of the ’round-the-clock video because we get to watch the wigglers at any time, day or night. These snoozing ferrets are an anchor that I use to ground myself in the middle of a hectic workday.

For me, watching this stream is a meditation. While there is a varied soundtrack in the background (musical pieces from the Heartbound video game by PirateSoftware), sometimes I find it more peaceful to sit in silence as I watching the little guys sleep, piled up on top of each other. It feels like a perfect pause.

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The rescue is expanding! Snail’s House has moved to a new and larger location and is still in the process of securing fiber internet; until that time, the stream may occasionally be pixelated.

Kidney Stones: Errr, Maybe Not?

(Title image: Photo by 愚木混株 cdd20 on Unsplash)

So my health has taken an interesting turn.

About a week ago, I went to see a nurse practitioner (NP) for an interesting combination of symptoms: nausea and middle back pain. After listening to my complaints, she determined that the cause was most likely kidney stones.

So…I’m not the typical kidney stone sufferer…but I wasn’t the typical breast cancer getter either, so I accepted her diagnosis while we awaited lab confirmation of whether there was blood in my urine (TMI, sorry).

And then I proceeded to waste an entire weekend on the Internet, driving myself bonkers about what foods contained oxalates (a common kidney stone culprit) and how to combine foods that did with calcium, but not too much calcium.

I was treading in the Wild West of the Internet and I soon learned that kidneys are big business and everyone not only has an opinion, but is also selling something.

Kidneys = $$$ and clear and concise info was harder to find than I anticipated. More stress!
(Photo by JESHOOTS.COM on Unsplash)

At the same time, except for one relatively bad night with a lot of pain, most of my symptoms remained mild-ish. Definitely not “hurts more than childbirth” level.

However, as a result of this, I was afraid to eat, which seemed to increase the pain and I realized that it was actually kinda sorta in my stomach?

Four days after submitting the urine sample, my NP called with the results: no blood in the urine.

That made the “kidney stones” story more difficult to believe. So after more discussions with her, she settled on the possibility that I might just be experiencing particularly bad heartburn and prescribed omeprazole to reduce the levels of acid my stomach produces.

This actually made a lot of sense to me. I am one of those “stress non-eaters”: in difficult situations I lose my appetite quickly, go for longer periods without eating and tend to lose weight. That leaves a lot of time for my stomach to sit empty.

But this also brings up another point that I find personally interesting. I have consistently been doing better with handling general stress and anxious episodes. I now have a plan for stress that includes understanding my reactions and using mindfulness, meditation and exercise. As a result, I experience far fewer episodes of runaway anxiety.

Stomach, stress…it all feels like fire.
(Photo by Yaoqi on Unsplash)

However, I am not able to control everything that happens in my body. I might be able to soften my response to stress and anxiety, but over the long term my body may still show signs of wear and tear from the pressures that I face.

This may also mean that while I’m doing great with keeping my stress levels lower, I might not be doing as great as I think I am. If this is truly “heartburn” or a little ulcer or something, it’s a reminder that managing stress is a constant process that requires vigilance.

Oh, and there’s also the oxalate thing, which my NP said not to stress over since it’s probably not a kidney stone. Which is good. Except now I’ve bought a bunch of low-oxalate foods, a number of which are the ones that I learned I should avoid for stomach issues.

Health is becoming a nonstop game of whack-a-mole.

Why Does Mindfulness Have to be Expensive?

(Photo by Mackenzie Marco on Unsplash)

This past January, I was delighted to receive an email from work about a day-long mindfulness class being offered to help usher in the new year. What a great idea! I can think of no better way to launch into another journey around the sun than with a sense of calm and acceptance, and I felt myself puff up with enthusiasm.

But as I scrolled down for more details I saw that this retreat had a price tag. Good feelings gone. It was close to $100.

This was an experience offered by my workplace, presumably so that I could be a more mindful employee, and they were charging for it.

Need I say, work can be stressful?
(Photo by Alex Kotliarskyi on Unsplash)

I understand the importance of investing in yourself. It’s worth more than a monthly Netflix subscription and will get you much farther in life than a daily Starbucks run. Mindfulness experiences are where I want to put my hard-earned dollars.

But this past year was tough. I needed mindful guidance even more, and yet I kept coming across financial barriers.

Why does all this good stuff need to cost so much? Meditation costs absolutely nothing and offers infinite rewards, and yet, there seems to be a vibe out there that you must spend money (the right cushion, the most beautiful journal, the most blissful island retreat, the perfect yoga pants) in order to do this right.

I live in Southern California where the cost-of-living is high and so are many salaries, but not all. And the gap between those who live comfortably and those who struggle to get by is widening. There are so many who could use the grounding and calm that meditation can offer.

At the same time, I completely get that someone like a yoga teacher or a sound therapist in this area is also struggling. In order for them to be able to offer the services that they do, they must cover their costs.

Yeah, I know. All this mindfulness stuff seems to be unnecessarily pricey.
(Photo by Magic Bowls on Unsplash)

So here’s my wish for the remainder of 2024: Hey, workplaces! Yeah, you, the ones who expect a lot from your employees! Make sure they are fully supported in all aspects of wellness. Bring in a meditation teacher or a yoga instructor. Set up a quiet space for people to destress for a few minutes. Don’t expect your workers to shell out part of their paycheck for staying grounded dealing with your expectations.

And for the meditation teachers and yoga instructors and sound therapy practitioners and the like who are actually making a very good living…fine. Do your thing. Charge your prices. I know that trainings and musical instruments and sacred spaces aren’t cheap. There are people who can and will pay a premium for them to get a truly calming and magical experience.

But after that, please. Offer free classes in parks and libraries and community centers. Volunteer your time for a good cause (my favorite has been a charity yoga class at the local Humane Society). Look for opportunities to share your talents in the not-so-bougie parts of town.

It will make a big difference to people who usually are not usually shown such grace.