Still Not Stinky: Chemo & Body Odor 5 Years Later

After finishing chemo for breast cancer and noticing that I had no body odor, I decided to write a post about it because the Internet was silent on the topic. Apparently, I wasn’t the only one who’d come up empty. A number of you commented that you’d noticed the same thing and similarly found no explanation.

Well, five years after my initial diagnosis, maybe 4.5 years after finishing chemo, I still can’t locate info on the Internet about this.

If I do find the odd article about cancer and body odor, it’s about the exact opposite: smelling bad as a result of the disease or certain medications. Not what I’m looking for.

Hey, Internet! Is there really no one looking into this?

It is quite weird that I can’t even find anything in the US National Institutes of Health PubMed database, so I would suspect that chemo-related loss of body odor is not on the radar of researchers. Well, it’s certainly not on my oncologist’s radar because he said he’d never heard of it and didn’t think it could be attributed to chemotherapy. Personally, I can’t imagine how it could be from anything else.

I’m going to pester him about it again during my next appointment. Usually armput odors are caused by bacteria. As an article from the Cleveland Clinic explains, odor is produced “when bacteria on the skin break down acids contained in the sweat produced by apocrine glands, which are located in the armpits, breasts, and genital-anal area. The bacteria’s waste products are what produce the smell.”

And NPR ran a story on researchers looking into what the worst bacterial offenders are, noting, “When the bacteria break down the sweat they form products called thioalcohols, which have scents comparable to sulfur, onions or meat.” The greatest culprit? Staphylococcus hominis.

So then maybe the chemo stops the production of thioalcohols? Or chemo wipes out the S. hominis living on our skin? I’m surprised that no one is researching this in the context of chemo patients, because it seems like it might have some health implications. We still don’t know all the side effects of chemo drugs and it would be useful to start a conversation about this one.

If you’re experiencing this, please tell your medical team. They might simply not be aware of what’s happening.

I’m not saying that I smell like a bouquet of flowers, but according to my husband, there’s no “sweaty pit” odor.

And you might be wondering what my current experience is, almost five years later. Even though I departed the realm of the completely-odorless about two years after completing chemo, I still have very little body odor. And it’s not like I don’t give it chances to fester since I work up a good sweat when I exercise. Note that my left armpit, which was thoroughly irradiated, exudes almost no noticible odor. My right armpit doesn’t smell very much, but sweat that gets on, say, a sports bra will start making the fabric stink the next day. (Let’s just say that I’ve been testing this out.) The skin in the armpit itself? Minimally, and that’s with no deodorant, although I do wear it anyway.

Certainly, the six weeks of radiation therapy on my left side would likely have an effect, and so it would make sense that there’s a difference in odor between both armpits.

Still, the “natural” (and unfortunately overpriced – yeesh!) deodorants do a very good job of fragrancing my armpits because they don’t have to work very hard.

So the mystery remains. I’m going to keep digging into this as it’s likely there’s a disruption of our skin microbiome involved, and given the popularity of that research (see microbiome and armpit odor info at drarmpit.com), someone may be looking into the connection between chemo and body odor in the future. Until then, I’ll just remain happy and relatively unstinky with fingers crossed that it continues.

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Many thanks to my very patient husband who played along and agreed to smell every place I pointed to. I’ll revisit the odor issue during the summer just in case…

Lovingkindness When It’s Hard

Lovingkindness (n.): a tenderness and consideration towards others (Oxford Languages)

Sonder (n.): the realization that each random passerby is living a life as vivid and complex as your own (Dictionary of Obscure Sorrows)

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One of my goals for 2022 is softening my views of difficult people.

This takes some mental calisthenics. There have been individuals in my life that have impacted me in negative ways, and trying to see around that is usually met with a great deal of internal resistance on my part.

But when we hold onto hurt, we sully ourselves, not to mention completely (and possibly unfairly) writing off the person whom we view as the cause of our pain.

There have been people in my life who seem to go out of their way to be cruel.

I need to stress that giving difficult individuals a second look to examine their internal motivations does not mean absolving them of all responsibility for their actions. What they did or said remains that and their role in your pain is not diminished. But in letting go and softening our own reactions, we heal ourselves and decrease the impact that the individual’s actions have on us.

What has been working for me is one simple thing: to pause and imagine what pushes people to be uncharitable. In my experience one of the main motivators seems to be fear. We all have our own ways of dealing with this emotional state, some of us may retreat and tremble (this would be me), others may lash out and attempt to control the situation that way.

I’ll go out on a limb and say that many of those in our lives that we perceive as “evil” may be running away from something. And their inability to deal with their fears and shortcomings makes them very pitiful indeed. The more thoughtless and controlling and misery-inducing an individual seems to be, the more fear they may well have bubbling under the surface.

If we can step back a bit, we can mitigate their power to upset us, because that’s when we see their behavior in a different context.

Let me offer an example: One of the most toxic bosses I ever had would go into “tyrant” mode, judging immediately and harshly, seemingly unable to manage her employees without bullying them. There was intense tension when she was around and I felt like I was never good enough, something that affected me deeply.

Difficult people may be fighting their own inner demons.

But I soon learned that she made everyone feel that way…and also that she was locked in an unhappy marriage and had little control over her personal life. So she established (and overestablished) control where she could. She hired young employees who would work for lower wages and greatly increased her profits, although it also resulted in a significant turnover because the conditions were psychologically distressing.

I dreaded work so much that it was only a matter of months before I resigned my position. I got myself out of there, a decision I never regretted. And I stress this because if a situation is bad, even if you can find some sympathy for the perpetrator, it never means you should stay there and take the abuse.

But understanding what a difficult person is going through can offer some balm for your soul as you shake off the effects of the negativity. Naturally, this is far easier to do from a distance, but it can also help create some emotional space for you if you cannot put physical space between the two of you just yet.

And in the context of a lovingkindness meditation, this makes it much easier to bring that individual into focus and offer them kindness and compassion for what they are experiencing.

It may help to consider this: true power comes not from expressing your dominion over others; it comes from understanding the reality of the situation and making the choice to respond with compassion.

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In the case of my former boss, upon searching for her recently, I was shocked to learn that she had founded a charitable organization to help children in need. All those profits that she had amassed had gone to a very good cause, as she now worked exclusively on a volunteer basis.

I’m so happy to have seen this giving, caring side of her. Wish she’d been able to show it to us.

And I sat there, staring at her photograph on my computer screen. That was her, certainly decades older, but different from the way that I had remembered her. So much more complex a human being. And instead of scoffing at the “old person trying to get into heaven”, I was filled with joy. Inside that being that I had only known as a tyrannical boss was a genuine caring person who was finally able to express her true loving nature.

Nothing could have made me happier.

Nothing to Fear but Fear…Sort of

About five years ago around this time of the year, I had an uneasy feeling.

So, let me back up. The previous August 2016 I had felt a small lump in my left breast. It wasn’t all that different from another lump that I had gone to see my Nurse Practitioner about in late June 2016, and she had put my fears to rest.

Still, she noted that I hadn’t had a mammogram since 2013, so she wrote me an order for one so that I could keep on track with my screenings.

But I dragged my feet on the mammogram. And when the August lump appeared, I decided to wait until it disappeared–you know, like they always did–before setting up the appointment. Because going into a screening knowing that I had a lump seemed terrifying.

You can’t hide from your fears, but that didn’t stop me from trying.

It didn’t disappear. I kept feeling it, pressing it to see how squishy it was, did it move about, was it getting bigger. And all the time, wondering how long it would last. It was hanging around longer than I expected.

But I still waited because I was afraid. I didn’t want to go to the mammogram and have the technician look concerned. Maybe she’d call the doctor in and the doctor would look concerned. Maybe they’d suggest more tests.

I *knew* it was nothing because it had to be nothing, but I didn’t want to risk having the medical professionals think it was something because that would be terrifying to me when I really knew that it was nothing. I didn’t want to experience that fear needlessly. I was afraid of being afraid.

So I waited until around this time of the year in 2017, when, after talking with my mom, we both agreed that getting the lump checked out would relieve my building anxiety. I imagined a pleasant conversation with the Nurse Practitioner as she would say, “Don’t worry, it’s nothing.”

Except that’s not what my NP said. Her expression went from friendly-smiley to concern, and she told me that I needed to get that mammogram done as soon as possible. All that fear that I’d tried to avoid by not getting the screening suddenly hit me at once. As the NP left the examination room, she admonished me to not put the mammogram off.

The order that I got read, “Mammography and Diagnostic Screening”. The left breast on the picture on the sheet was circled. I think. To be honest, I don’t remember much more than that. To an outsider, I was just going to have a suspicious lump checked out. But inside me, there was a tornado of anxiety whipping around unchecked.

I know I know I know…but at that time, the fear of what might be overpowered common sense. So I waited.

I had waited six months simply to avoid fear. I was so afraid of the fear that I was willing to risk my life–even though I hadn’t see it that way. The overwhelming need to not experience fear trumped everything else because it was so horrible that I couldn’t seen past it. Nothing else mattered.

Believe it or not, I didn’t realize that I had been suffering from severe anxiety for a number of years. It was always bubbling right by the surface, occasionally boiling over, but never sufficiently dealt with. It had built up throughout my life through an unfortunate series of events and I had become worse and worse at shaking it, but the two years prior to my diagnosis brought some of the longest bouts of chronic anxiety and feelings of worthlessness.

And all that fear that I had, that reason for not getting the lump checked out, that fear that almost cost me my life? Cancer was what forced me to face it. The most feared disease that I could have imagined ironically put me on the path to finally dealing with one of the most crippling issues of my adult life.

No, I’m not going to say that I’m thankful for cancer. Because that would be ridiculous. But I can now step back and see the worth of fearful experiences and understand that sometimes it’s the horrible things that push you into the most meaningful personal growth.

Little Decisions Build Beautiful Things

This is the time of the year that many people make resolutions they hope will catapult their life into a new and positive direction.

So it’s also a good time to encourage people to slow down and consider what they hope to achieve and how they plan to get there.

And they’re off! The New Year fills us with energy to make big changes, but most of that impetus fizzles out as we realize that our plans are not sustainable.

The New Year’s buzz drives us to dream big and leap high, but with all that emotional energy expenditure, we run the risk of overwhelming ourselves, burning out quickly and falling far short of our lofty expectations. And that may make us feel worse about ourselves.

This year, take a step back and consider: it’s the small changes that you make on a daily basis that determine where you ultimately end up. Consider an ocean liner that turns very slowly. It makes little adjustments in its course, but depending on which adjustments it makes, it can end up in very different places.

The real name of the game is consistency. While the big goal may be the shining light you strive for, consistency paves the way. And mindfulness helps you get there.

Maintain awareness of the present so that you have perspective on what choices you’re making today and their effect on tomorrow.

Focus on what you can do today. Even this hour. Want to increase your activity level? Get up and take some steps right now. That doesn’t mean sprinting around the parking lot for 10 minutes. It means doing something you wouldn’t have done otherwise. Something that won’t give you side stitches and result in wanting to throw in the towel.

Make little decisions to change something. Make them doable. And then make them consistently.

Maintain your awareness, every day, of what you’re doing and why.

And when those changes have become comfortable, do a little more. Keep your eye on consistency, not quantity.

Establish positive little habits the way you’d spread the seeds for a lovely cottage garden. Because here’s the thing: this is not a race. This is your life. You don’t live your life a month at a time–you live it moment by moment. And that’s the way you make changes.

Be like the big ship whose many little changes, made consistently, take it to fantastic places.

Any decision that positively affects you remains yours to keep, like a little jewel in a box. Did you go for a walk among trees after lunch instead of hanging out in your office perusing social media? No one can take that experience away from you. Tomorrow, if you have a meeting after lunch and must stay at your desk, the positive effect of that walk will still have taken place.

It’s like a little brick that you can use to build a palace. You collect one each time you’re consistent with a behavior. Play the long game.

And when you remain mindful of your behavior every day, you can also step back and see where you, the human ocean liner, are headed. This makes it easier to correct your course. A short diversion does not need to take you in an unwanted direction. One small correction and you’re back on track.

And that thing that you might have called a “failure” in past years and just given up because you’d figure you’d “blown it anyway”? It would be a temporary side trip. Because you are mindful of where you are and where you’re going.

And that’s how you know you’re going to get there.

Happy New Year!

Gratitude: It’s Not Just for Big Things

A number of years ago, when my kids were still very small, we lived in an area with brutal winters. That meant sub-freezing temperatures for weeks at a time. Money was tight so we had to keep the thermostat in the 50s overnight and in the low 60s during the day. To make matters worse, our bedroom was in a part of the house that the radiator pipes wouldn’t warm properly, so it was always cold there at that time of the year.

Gratitude for a cup of tea and a quiet moment to write – that is enough.

And by “cold” I mean, the bedsheets would be literally frigid when it was time for bed. So much so, that my joints would ache and I’d be miserable until my body heat could warm them up.

This continued for a year or two until I found an electric mattress pad. The first night that I crawled under the sheets with the heat turned on, I thought I’d won the lottery.

There were so many negative parts to the years we lived there, but going to bed with warmed sheets overwhelmed me with gratitude for the simple pleasure of removing the pain of the cold.

The reason that I’m telling you this is that it’s so obvious to be grateful for the stark changes in our situation. It’s a no-brainer.

But there is no need to wait for something like that. There are simple things that we take for granted that it would be so easy to be grateful for.

Turn your attention to little pleasures and acknowledge their importance in your life. Take some time to sit and bring them to your awareness. Feel into how they lighten your existence. Maybe thinking about them makes you smile. Or maybe the fact that something is simply working properly can be enough to help us realize how fortunate we are to have it at all.

Whatever it is, open up and invite gratitude in.

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Maybe generating gratitude during bad times is exactly what we need.

Those of us who have recently gotten a cancer diagnosis may feel a touch bitter about this concept. Understandably, it may be easier to be grateful when you’re not dealing with a serious disease. And no one would blame you for having a hard time generating a mood of gratitude.

But perhaps that’s exactly when you should look for things that elicit a sense of gratefulness, no matter how small. It may be one of the most important things you can do to maintain a sense of well-being in a difficult time.