Loss – Frantic Shanti

Permission to Grieve

I feel like I write a lot about loss when speaking of my cancer experience. That may seem like a downer, but truly, cancer treatment is a complicated process in more ways that expected. Bear with me for a few…

There’s so much to lose: lose control of your life, lose your hair, lose your lunch, lose a lot of money, lose time at work, lose your libido, lose your overall quality-of-life. In more extreme cases, lose your spouse and your house. And unfortunately, sometimes lose your life. On some level most of us may feel some sense of loss.

Cancer is complicated because it can bring on a huge sense of loss.

I keep talking about this because it’s not something that’s fun to talk about. Most people don’t know what to say when they find out you have cancer. They’re hesitant to say something to “remind you” of the illness, as if you could forget. Relationships can become strained and awkward.

Interactions with cancer patients often turn into a “rah-rah” fest, with well-meaning friends showering you with “you got this” encouragement. But that’s not always what you need to hear.

I urge everyone who cares about the well-being of a cancer patient to allow them the opportunity to express how crappy things are. To simply listen and not contradict them. Because being insistent that it’s not okay to talk about anything negative creates an even bigger sense of loss for the patient.

Does this sound wrong? We’ve been led to believe that being positive is the only way we should be and that it’s no fun to be around those who are gloomy.

But consider this: would you go to a funeral and try to get the grieving family to “cheer up”? Would you try to tell them jokes and elbow them into smiling? I don’t think you’d be very successful and might be escorted away – at the least your invitation to the meal afterwards would probably be revoked.

Forgo the cheerleading and simply offer an ear and a shoulder.

We know that behaving this way is unacceptable, at least in most cultures (I can’t speak for everyone). Grieving is an important part of the human condition and not being allowed to grieve loss can be very stressful and lead to problems down the road.

So it is for the cancer patient. There’s so much more going on than simply increased doctor visits and medical procedures. Minimizing the impact that this has on their lives may range from feeling unfair to devastating.

Of course, every patient is different and their reactions will differ too. But I would urge loved ones to err on the side of caution, give their cancer patient the time and space to process and grieve and save the exhuberant “cheering up” for a time when the patient seeks that out.

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Ok, ok, the “loss of body odor” is one loss that’s not so bad!

Don’t Overpink It

If you have been living under a rock or have pink color blindness, it probably hasn’t escaped your notice that October is Breast Cancer Awareness month.

I know I shouldn’t disparage the color pink (after all, my hair is currently pink), but there is a downside to all of this “pinking.” Actually there are two.

Awareness is important, but has the inundation of pink made the month lose it’s meaning?

First, after some point, there’s so much pink that it starts becoming meaningless. Whereas it used to be loads of fun for pre-adolescent boys to go around with “save the boobies” t-shirts in the name of cancer awareness, and then make a social media stink about it when their school sends them home to change, I’m not really seeing that kind of enthusiasm anymore. Kind of like when something that was cool and forbidden becomes legal…it loses its luster.

Which is not to say that breast-saving have gone out of style. A quick search of local events in my area does result in a number of fund-raising events. After all, we are still being diagnosed with breast cancer and in ever-greater numbers. But maybe it’s because of the pandemic, maybe it’s because of my current state of mind, I’m not hearing much about spreading the word of breast cancer prevention (not simply screenings) anymore.

But there’s another part of the pinkness that I’ve struggled with. And that’s the pink everything around this time of the year. I mean, if we want people to be aware, I guess they’re aware. But those of us who have lived the diagnosis may need to turn our awareness elsewhere.

That may sound ungrateful of me because all that awareness has translated into dollars for research, potentially at the expense of other cancers. And even though I will tout breast cancer awareness at this time of the year, it also stings.

I’ve lost friends to breast cancer. And I lost a year to breast cancer treatment, not to mention a good amount of my direction in life. Yes, I’m recalibrating, but no, things are not back to “normal”. Cancer still means people and things that are gone and will not return.

Consider taking your breast cancer friend out for coffee…with no pink in sight.

At times all this pink feels like loud cheerleaders shaking pink pom-poms in my face. And for many cancer patients and survivors, being constantly reminded that it’s BREAST CANCER AWARENESS MONTH can be overwhelming. We may need to ground ourselves in where we are right now, being present and grateful for each minute and away from all the pink noise.

So I agree that with 1 in 8 women being diagnosed with breast cancer at some point in their lives, and the mortality rate still unacceptably high, it’s definitely important to spread the word about risk factors and urge that women do the oh-so-critical self-exams and not forgo screenings.

But it’s also a great opportunity to reach out to a friend or relative who’s a patient or survivor and offer to take them out for coffee or a walk…and let them forget what month it is.

What I Learned By Feeding Virtual Fish

I wrote my previous post about Zen Koi 2 so that I could write you this one.

You’d think that with a lovely mindful smartphone game where there’s limited stress and little competition, I’d be able to sink into peaceful bliss every time I played. Oh, but no. After I fell in love with Zen Koi 2, I found myself engaging in rather unmindful behaviors.

No stress? I’ll create it! All I needed to do was swim my delightfully colorful koi around and nab a little morsel here and there. It wasn’t long before that turned into frantic darting around the pond, frustrated by the prey I wasn’t fast enough to easily catch, annoyed by lack of maneuverability (these abilities improve as you level up), incensed when a spiny pufferfish blocked my path or spikey plants slowed me down. Instead of creating space between myself and the game, I was sucked into it and treading virtual water frantically.

Mind you, there’s no time limit on playing this game, no detriment to your koi if you spend a lot of time in one area. The prey items never run out. All you need is patience…and a little perspective.

I had trouble releasing newly hatched koi, wanting to keep them in my separate, personal pond (which has very limited space), so that I could play with them again. All this, even though once a koi is hatched is it in your collection permanently, and if you release it, you can easily clone it and swim with it once more. So there’s absolutely no need to hold on. But I was grasping, unable to let go. My behavior didn’t make sense.

It really wasn’t until I found myself clenching my jaws and gripping my phone that I dawned on me that I wasn’t enjoying this. I was striving for the next level. What I had at the moment wasn’t good enough, I was always trying to increase my koi’s abilities or get to the next sigil. I wasn’t enjoying the beauty of the little fish I had now. As soon as a mating fish appeared, I started drawing Punnett squares in my head, calculating what color combinations would result, and whether I potentially needed the hatchling to complete a collection.

Clearly, this sort of behavior is *not* what I’m going for when practicing mindfulness. In fact, it is completely antithetical to it. The striving, grasping, inability to focus on “now” was very telling. These are, of course, digital creatures, color pixels on the screen. It was my mind that made them real, my mind that created the anxiety around the game. It was my mind that gave the game so much emotional power over me.

So much grasping. I can’t get back what I lost by holding on to things that can’t be.

So I was thinking. Isn’t that kind of like my relationship with my fears? They too are not real, and it’s likely that a majority of them will never be real. And yet I attach to them and let them drag me around, frustrating me, agitating me, and in general, making me miserable.

For me, my cancer “story” was about loss. Loss of hair, loss of energy, loss of hope, loss of time to do more in my life. And the more I had felt I lost, the more I clung to how I wanted things to be. But they couldn’t be like that. I had already realized that, but it wasn’t until I played that innocent little smartphone game that I saw how powerful my attachment was to the things I really needed to release.

So, the next time I played with my fish, I gave myself distance. When I found myself clinging, I took a deep breath and let go. I let go of the newly hatched koi, I let go of the need to be more than I already am, I let go of the fears about tomorrow. And nothing bad happened. My koi was still peacefully traversing its little pond. I was still sitting on the couch, phone in hand, just like before. It was a pleasantly grounding realization.

Spiny pufferfish be damned. I think I can do this.

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My need to hold on is like my cancer journey: still a work in progress. I don’t know what the future holds. But if I can make this moment a little more pleasant instead of mourning all my losses, then I will consider that a victory.