Associations – Frantic Shanti

Another Oncology Appointment…and What’s Up With That Smell?

My oncologist appointment last week marked five years since completing my final chemo infusion (and for those of you keeping track, since I had that nasty chemo nail infection).

Lately, my oncological appointments run like this: my onc asks how things are going, I air all my grievances and we spend the rest of the visit agreeing that there’s no way to determine whether what I’m experiencing is chemo-related, menopause-related, or something that I was dealing with before but hadn’t paid attention to back before cancer.

Because there’s nothing like cancer to make you acutely aware of every twinge and creak in your body.

But that’s about it. We are running out of things to talk about. In this context that’s a good thing.

I used to lament “what could have been” had I not gotten cancer, not experienced chemo, not been pushed into menopause chemically and artificially had my estrogen levels squashed. But now, I know better. What happened, happened. And “what could have been” is pointless to ponder because it simply isn’t reality.

It took me a while to get to that place and I’m finally okay with it .

But there was something else different about this oncology visit…

I walked into the cancer center for my appointment and was hit with “the smell”. There is a distinct scent in the building, possibly the cleaning solutions used to disinfect the place or maybe a fragrance that is purposefully pumped in. I had mentioned it to my clinical counselor several years ago and she admitted that a number of people have said the same thing. The smell is familiar, given that after multiple appointments and infusions and radiation sessions, I’ve experienced it a lot and have made many associations with it.

But for some reason, this time it hit me hard and a wave of sensations washed over me. Not sure why my reaction was so strong, but I’d like to think that between my last onc appointment and this one, I’ve made the most progress in distancing myself from the frustrations of getting cancer and have actually moved on with my life.

However, that rush of emotions served as a reminder of everything that I’ve been through over these past five years. I thought that chemo was going to be the hard part. Turns out, it was the most predictable part: six trying infusions, but they came with an end date. The rest of treatment brought uncertainty and unexpected difficulties. I thought I was done after radiation…but the pills continued.

Looking back at this, while I’m technically not “out of the woods” and may never be, these last six months have felt different. Yes, I still have another onc appointment half a year from now, but I’m finally turning my face forward to the future instead of constantly looking back at the past, worried that those frights will catch me again.

Two Simple Tips for Grounding Before Work

I wanted to share two little things that I do with my work setup to help ground me at the start of my day.

First, consider what’s in front of your eyes after your computer boots up? Choose a computer wallpaper to anchor you. Pick a calming scene, one that’s meaningful enough to tweak your emotional state. This is going to be different and personal for everyone. It might be random nature scenes, photos of people you care about, photos from places that you’ve visited, abstract images that you find peace-inducing and the like.

I have this image as my computer wallpaper and imagine how nice it would be to pet her when things at work get rough.

As an example, I currently have the head of a beautiful black panther poking out through lush green leaves as my background. The photo is highly detailed and when I look close at it, I am drawn in by the soft fur around her face, I imagine what it would feel like to scratch her behind the ears and “boop” her on the nose, even imagine her purring in whatever way panthers purr. This wallpaper allows me to slip away into big cat fantasies for a few seconds when I need a break, using all my senses to imagine what it would be like to interact with her.

It’s not just about finding the right image, however. While I currently use this panther as my grounding and relaxation anchor, if I go through a particularly stressful period of time where there’s a lot of anxiety at work, I will change the background to something different after the stress subsides.

Why? Humans tend to be visual creatures and we make strong associations that we’re not always aware of. If you’ve been looking at the same image while you’re close to having panic attacks, it’s time to change the image. Trust me on this one–it has to do with associative learning (think Pavlov’s dogs, except without the salivation).

I did this after going through cancer treatment. Done with chemo? Changed the background. Finished up radiation and herceptin? Changed the background. As much as I liked the backgrounds I was using, it felt great to get something fresh up on my monitors. It felt like a new start and I really needed that.

The second tip I have is equally simple and has the added benefit of being helpful in terms of computer security .

Find a phrase that makes you feel good? Turn it into the passphrase that you type every morning!

Change your password to a passphrase that inspires you or calms you. How would it feel to recite an affirmation or words of encouragement when you log into your work computer every morning? Make it so. It could be an expression of self-worth (iAM-D3$ervinG0fLoVe), a reminder to stretch (r0llY*ur$hou1d3rs) or any other positive phrase (th1s2$hallP@ss-Justbr3@the). It might be that little thing you need to give your day a teensy push in a positive direction.

For additional cyber-protection, stick in a word from another language –perhaps the sanskrit version of your favorite yoga pose?

The above tips are not earth-shatteringly novel concepts, but they are remarkably effective. Give them a try and see if they make your day a little more bearable.

Making Mondays Bearable

As 2022 approaches and we face the prospect of having another twelve months speed by us again, I’ve found it useful to sit down and take stock of where I was last January, what changed over the past year, and with what attitude I will enter into the next 12 months.

One thing that has caused a great deal of anxiety for me has been work, even with having one of the greatest bosses in the world and a flexible work situation.

My work situation is quite positive, but anxiety has left me with emotional claustrophobia.

Why? Because my job has also been associated with some of the most wrenching anxiety that I have ever experienced, including being diagnosed with cancer.

What’s resulted is that even in a supportive and stimulating environment (although not my passion, admittedly), I’ve felt trapped, like an animal trying to scratch my way out of my cage.

This past year, I came up with a tactic to at least partially relieve this feeling.

Now, I actually look forward to Mondays, because I’ve set up a beautiful association for the first day of the workweek with something very indulgent.

First, I work from home on Monday. This softens the dread that I’ve historically felt on Sunday nights, knowing that the weekend is over. The transition to the office is gentler.

Second, with some changes in my kids’ school schedules (one in college living at home and the other in high school), I start my workday an hour later. This has given the entire family reprieve from the stress of waking very early and starting the week sleep-deprived.

It also gives me to time to enjoy a cup or two of decaf in the morning.

Third, when the rest of the family leaves for school and work, I have 45 minutes before my own workday starts. I set up my rower for a 30-minute row, facing the tv/computer monitor in the living room…

Great exercise + fun videos = an amazing start to Monday!

…and put on a half-hour YouTube video of something I really enjoy that I might not have time to watch otherwise. For me now? It’s an episode of “BuzzFeed Unsolved–Supernatural”. Pure 100% indulgent entertainment.

Because it’s a timed row, when the 30 minutes are over, I stop. No pressure to hit a certain speed or distance. No matter what, it ends up being a decent workout because I enjoy the exercise.

That leaves 15 minutes before I start work. Chemo left me with short hair that allows for a five-minute shower.

By the time my workday begins, I am completely refreshed and the day’s workout is done. I feel like I’ve been given a huge treat–almost like I’m cheating, but I know I’m not. That 30 minutes of physical activity tied with watching a fun video re-sets my attitude and I’m ready to take on the week.

I love Mondays!

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Can you create your own positive association with the toughest day of the week or anything else that causes you grief?

Sanctuary: Creating A Safe Space

There have been times when things in my life have gotten intense and I feel the walls closing in on me (cancer, I’m looking at you). Those are the times that I need to back off and give myself space to breathe. Being a very visual person, one of the methods I’ve employed is finding an image and associating a calm mind with it.

This becomes my safe space. Whether you prefer to call it your “calm space”, “sacred space” or even the oft-ridiculed “happy place”, the idea is the same. Find the visual elements that you find soothing and comforting — perhaps a place in nature, a place from your past where you felt safe, even a fantasy land that you create for the purpose. Real, imaginary, familiar or visited only in your mind, it doesn’t matter. What matters is that it resonates with you.

When I did this most recently, in the preparatory phase for Eye Movement Desensitization and Reprocessing (EMDR) therapy sessions to help with anxiety that I’d never been able to shake, I made a new Pinterest account to collect images.

I highly recommend this for anyone going through stressful times. We all need a buffer between ourselves and this hectic, unpredictable life, and this is one way to do that. Collecting and pinning these images is relaxing in itself!

I have always been drawn to natural settings with lots of greenery, so I searched for elements such as gardens, greenhouses, water, hanging vines, flowers and fish. This is a place created exclusively for me.

As if from another time, this space offers vines, a beautiful pool, elegant architecture and the feeling of a hideaway. https://www.pinterest.com/pin/701998660650066569/

It is is easy to find many images that capture the feeling I’m after: a sense of closeness and security in a place of natural beauty, where I can be alone (unless I chose to let someone else in), a space impenetrable from the outside.

There’s nothing quite like watching koi to bring peace to your day: https://www.pinterest.com/pin/701998660650161590/

The sound of running water is luxuriously soothing, and the vibrant color of koi brightens everything. The above image may have been at the side of a house, but in my mind, it could be a hidden corner that only I can access.

A beautiful path, lined with flowers, that gives the feeling of being tucked away in an elegant and exclusive setting. https://www.pinterest.com/pin/701998660650067012/

Not all spaces have to be confined, as this vine-covered path above illustrates. It provides room to wander and breathe deeply while still feeling secluded.

This could be the magical entrance to your fantasy space: https://www.pinterest.com/pin/701998660650254229/

Your calm space can be made up of different images that show different elements of it. Each space needs a portal through which you enter, so why not make it magical?

It might be enough to have a safe area from which you can look out onto the world, but still feel secure in a colorful, fragrant setting: https://www.pinterest.com/pin/701998660650066950/

Once I had gathered a variety of images that evoked the feeling of grounding and peace that I sought, it was time to name it: one word (or phrase) that enables me to conjure up my calm space. I settled on Halcyon, but realized later that it didn’t give me what I needed (I’m picky about words and their meanings). Then I came up with Elysium, as it suggested an other-worldly place in the heavens.

I thought that name fit perfectly. Except that as we continued in the preparation phase for EMDR, I had a hard time maintaining focus on one particular image. I had chosen so many! So I thought about what I really needed.

It was breathing space. A place to pause when things come at me too quickly. Ironically, after pinning so many glorious images on Pinterest, I returned to a photo that has served as the background for my two monitors at work. When I arrive in the morning and log in, this image grounds me and I find myself taking a very deep breath, like a sigh:

This image speaks to me. It combines nature with a sense of spaciousness, yet feels secluded enough to impart a feeling of security. And my name for it? Sanctuary. So simple and to the point, and yet encompassing so many different emotions and meanings for me.

The next step has been feeling into the sensations that this calm space evokes. What does that feel like in my body? And then holding onto that feeling, saying the name, imagining the setting. You can “charge” the image with meaning in this way ( à la Pavlov).

The associations that are formed in the process create a sense of calm that I can draw upon to center and ground myself during periods of high stress. It’s not a pill to end all woes, but it can be a powerful tool for dropping yourself down into a more peaceful state. I encourage you to give it a try.

Memories of Blood, Sweat and Tears

There are some odd memories from my chemo experience that stick in my head. It was such a jumbled, frantic time when I was struggling to get a handle on what I was dealing with. I was going through my first few courses of chemo when my daughter was diligently learning the dance steps to K-Pop group BTS’ song, Blood, Sweat and Tears. Lying on the couch in the living room as she followed the dance practice video, I became involuntarily familiar with the song and its accompanying dance moves. Because of the frequency with which I heard the music, I was convinced that either I was going to love it — or would get nauseated and anxious whenever I heard the opening bars.

I never developed an aversion to it. In fact, it remains one of my favorite music videos. Any associations that I have with the song also include knowledge of having endured the chemotherapy medications and emerged on the other side of treatment. That positive perspective gives me a feeling of accomplishment. I can watch the video without any “baggage”, which is a feat for things cancer-related. The surreal nature of the video, coupled with the fact that most of it isn’t even in English, reflects my disoriented state during treatment: colorfully dreamy, occasionally inexplicable and an escape when reality became “too real” to handle.

The Problem With Pink

The breast cancer awareness movement has done a good job of bringing cancer awareness to the forefront. Especially in October, which is Breast Cancer Awareness Month, it’s hard to see pink without thinking of breast cancer. This is particularly true for someone who has gone through cancer treatment, but I expect that many who haven’t strongly equate the color with the cancer too.

Certainly, it doesn’t hurt to distribute pink “Save the Boobies”-esque stickers, t-shirts and wrist bands. It’s acceptable to say “boobies” in polite company, to broach the subject of women’s health, and this push to pink-out everything has resulted in more funding for cancer research. People probably think it’s cooler to have “boobies” on your wrist band than something like “Save the Pancreas”, the cancer of which has a much higher mortality rate. But a pancreas doesn’t look as good in a bikini top.

There is a darker side to this, and it has nothing to do with the usual arguments against pinking everything out, which tend to be about companies making profits at the expense of women. This is about what it feels like to be diagnosed with breast cancer.

At some point, awareness hits a saturation point. I’m willing to bet that many women who have been diagnosed with breast cancer dislike the color pink on some level. The diagnosis is life-disrupting if not traumatic, and the constant reminder from all the pink ribbons and other paraphernalia can get nauseating. And I do mean that in a physical sense. For me, diagnosis = anxiety; anxiety = nausea; pink = breast cancer…well, math was never my strong suit, but this all adds up to pink = nausea.

As I sat alone waiting for my surgery, feeling very nauseated, my Nurse Navigator paid me a visit. Incidentally, these nurses are the greatest thing since sliced bread (probably even better!), as they are a knowledgeable liaison between the patient and everything medical. In any case, my nurse brought me a goodie bag. Yes, it was pink and it contained various useful items relevant to my surgery and future treatments. And yes, most of these items were pink too. I guess these days it’s hard to justify using any other color if you’re talking breast.

But there was one thing that was not pink, and it’s because it wasn’t pink that I realized right then and there what sort of a visceral response I’d been having to all the pink stuff. It was a soft and springy heart-shaped pillow to be placed in the armpit to comfortably support the affected arm after surgery, and it was purple. Okay, with pink accents, but close enough. It was PURPLE!

This is a good place to mention that I make strong associations between emotions and my environment. This is a form of contextual conditioning. I’m sure I’ll write more about that in the future, but for now, I can tell you that having something not-pink that I used daily until my incisions healed, and having it be completely relevant to breast cancer treatment…but again, not-pink…actually took the edge off my anxiety. I was more likely to reach for it because at a time when I needed to relax and recover, the color didn’t remind me of my cancer.

That may sound unbelievable, but contextual conditioning is like that. I love that pillow and I love that it’s purple. And it’s really pretty amazing how my brain perceives that squishy little purple pillow as being so nice to have around. Don’t think I would have had the same response had it been pink.