Working Through It – Page 3

Unexpected News at my 7-Year Oncology Appointment

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A few days ago I had my seven-year post-diagnosis appointment with my oncologist. Seven whole years. And it was a weird conversation.

He said something that set me aback. He told me that he didn’t think I should worry about the cancer coming back. Essentially, I was cured (note: MY words, not his, but that’s the idea). [See bottom of post for disclaimer!]

He’s alluded to this before during previous appointments. But this time around felt different.

I’ve officially hit SEVEN!
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I returned home a bit confused. See, for the last seven years, I’ve been a full-on cancer survivor. Still holding on to the fear that at any moment, I would get those terrifying scan results back and–WHAM–I’m a cancer patient once more, back on that sickening rollercoaster ride through treatment.

As difficult as it was to accept that–even trying my best to live a healthy life–I had somehow been smacked down by cancer…now, I had a new problem. Reentering life as maybe not-so-much a cancer survivor anymore, but rather just a healthy, active postmenopausal woman with years ahead of her.

And that is a weird feeling.

For the first five years after my diagnosis, I was frustrated, even angry. Cancer was a devastating detour at a time when I was already struggling to find my way back into a career. Well, forget that. Derailed. I was bitter.

Eventually, I realized that while life sucked, it sucked for a lot of people and I wasn’t special in that regard. That was an important turning point in how I perceived my own role in my cancer story–it was humbling but also gratifying.

Humbling because my experience could have been so much worse. There were people whose treatment did not end well. I was incredibly fortunate, even when it felt like I’d been thrown in a sack and beaten with sticks. At least, I made it out.

Gratifying because early on I held myself responsible for getting cancer, even though I had literally done everything protective (lots of exercise, high fitness, plant-based diet, breastfeeding, not smoking, not drinking) that I could think of. I was desperate with frustration and helplessness about this. Letting go of that guilt was healing.

Feels like I’ve got the green light to hurry up and get on with the rest of my life now.
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So the last two years have been more about understanding my perspective and then stepping out of it to view things more objectively. Mindfulness and meditation helped with that, which is why I often write about them here. But I hadn’t been ready to get out of the breakdown lane and drive myself back into mainstream life, in part fearful of the pain of having the expectation of cancer-free “normality” smashed to smithereens by a potential diagnosis.

Gradually, that’s changed. But this last appointment felt like getting shoved out the door by someone yelling, “YOU’RE OKAY, DAMMIT!” Here I am, standing and blinking in the sunlight, trying to make sense of exactly what that means for me now. Wow, after seven years, I can actually stop being afraid.

I don’t know if I even remember what that feels like.

Yes, I’m still going to refer to myself as a survivor, because it’s a part of my natural history. I’m never going to forget that experience and I continue to be driven by a need to support others going through this disease.

And if it does return? Well, at least I will have had a brief glimpse of life completely outside the notion of cancer.

~~~~~~~~~~~~~~~~~~~~~~~~~~

Of course, because we’re talking about cancer, the statements above call for level-headness in the midst of levity. While my oncologist feels that the chances of the same cancer coming back are low, the possibility for a brand spankin’ new tumor, breast or otherwise, never goes away. It happened once, it can happen again. But that’s life. I’ll take it.

February: A Great Month for a Diagnosis Reenactment

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It’s February and that means it’s the start of “diagnosis season” for me. At this point in cancer survivorship, I don’t get as affected by everything that happened “on this date X years ago“. However, I have an oncologist appointment and my yearly 3D mammogram around this time, so I can’t forget what this month means.

You would think that since 2024 marks seven (!) years since my initial diagnosis, I’d feel pretty good about having made it this far past my treatment…and you would be right.

Seven years down and still going strong!
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I’m now living the feeling that I so desperately wished for seven years ago when everything felt devastating and out of control. My outcome, even with the many pesky moguls that I’ve had to clear, is something I’m so thankful for.

But of course, even as mellow and relatively unconcerned as I am now, there are little reminders of the rough and tumble past that unsettle me.

Like that point in my mammogram when the tech finishes up and leaves the room to consult with the radiologist, and all of a sudden I don’t feel great anymore. It’s maybe 5-10 minutes or so of sitting in a quiet room all by myself, wrapped up in that bathrobe-y gown made out of fabric that seems like it should be less scratchy, trying to focus really hard on the tropical ocean video that they have playing on the tv screen on the wall.

No matter how warm the room is, there is a cold spot in the pit of my stomach. The hospital does its best making the surroundings seem inviting. Really they try. But it’s kind of hard to mellow out the echo of an impending sense of doom.

Same goes for every time my oncologist says something like, “Hmmm, should we do another chest MRI?” No, no we should not. That’s about 45 minutes of being stretched out like superman on a surface that’s clearly meant for a woman much shorter than me, while getting my ears blasted.

In case you’ve never taken a ride in the tube, this is what it’s like. Don’t forget your earplugs. Bonus for chest MRIs: you’re lying on your belly with your arms stretched past your head for almost an hour, giving you plenty of time to reconsider your life choices.

My husband says the MRI sounds like a broken dot matrix printer. I think if your printer is making sounds like that, it’s time to evacuate the building.

Ah the memories. But again, I am talking about this from the vantage point of seven years away. It is nicer being up here above the fray. It also gives me a great view of the potential rollercoaster disaster that this season could become, if my scans go south.

But seven years into this, I’m betting it probably won’t. So far, so good.

Reflections on 2023; or “Focusing on What Doesn’t Suck”

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Warmest wishes to everyone for a joyous start to 2024! I hope you had a wonderful holiday season with your loved ones and are ready to launch into the new year!

I…learned a few things about myself in 2023.

My family and I had our share of misfortunes, bumps and hiccups and stumbles that started piling on. An apartment flood, two sizable rent increases, physical pains, emotional turmoils, family illnesses.

It’s easy to focus on the negatives (and *ahem* trust me, I did many times). But there were also some significant positives this year, not the least of which is that my cancer has not returned and I am still alive. Those are two biggies.

But I also found myself somehow managing, even in the midst of the worst stressors. I didn’t respond the way I had in the past, which would have been with a bought of nausea, racing thoughts and tortured nights.

So I know that something has changed: there is actual space between me and the things that suck. Now, there’s not always a lot of space–occasionally it’s a teeny gap that you could only slide a credit card through. And at those times, I might not even remember to take three deep breaths. But when I come to my senses I can breathe more space into that gap.

You need to stop and reflect on how far you’ve come to understand the benefits of what you’ve been doing.
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That, my friends, is called progress.

And as frustrating as it is that anxiety sometimes gets the best of me, my reaction is still so much better than it used to be and that provides motivation to stay consistent with a meditation practice.

So, if I learned anything, it’s that you don’t know how far you’ve come until you look back at the road you’ve been on and reflect on where you started.

But I also learned something else this year: sometimes you need to back off in order to go forward. I dealt with body pains that affected both my strength and conditioning exercise and yoga practice. I fought against taking it easy because I was so afraid of “falling behind”.

Well, nothing good comes of that. If anything, it prolongs recovery.

I was pushing myself to train harder and not respecting my changing limits. At the same time, I was juggling several online classes because I was also afraid of falling behind career-wise, on top of which I was concerned about finding a new apartment.

This was a classic case of spreading myself thin.

Constant striving made it impossible to my body to heal and rest and for my mind to assimilate information and construct useful goals and plans.

It was not until late December that I was forced to prioritize my well being because it hurt too much not to. Stressful events that came in the last quarter of the year gave me no choice. But in doing so, pain in my hip improved significantly and in backing off my expectations, I opted to focus on a single class, while at the same time continuing to sort through our belongings and get rid of things that we no longer need.

I slowed down and made more progress than if I had continued beating myself silly.

Look at all the beautiful positives that show themselves when you focus on the good stuff.
(Photo by Kim Stewart on Unsplash)

All in all, as frightening as 2023 was at times, I can see all the good that took place, and that’s the third thing that was a major revelation for me. I’d describe my view of the world as being like a picket fence. Sure, if I only look at the pickets I see the negatives that have taken place. But adjusting my focus on the the world that is visible between the pickets, it becomes clear that there’s so much more that hasn’t gone wrong.

Even when it seems that you’ve suffered so many setbacks–and it felt like I really stumbled during the second half of the year–when you review what DID work out, the sense of gratitude and relief is uplifting.

So even in the midst of everything that stressed me out, 2023 doesn’t seem so bad afterall. And that little burst of positivity is what I’m taking into 2024 with me.

Happy New Year!

“Left Behind”: An Unanticipated Side Effect of Cancer

(Title image: Photo by Denys Argyriou on Unsplash)

Apologies because this might sound like a rant but this topic has been on my mind a lot lately.

When you’re diagnosed with cancer, you learn about the many side effects of treatments.

You will be informed about the physical and even psychological effects that cancer patients deal with, but there are also considerable financial repercussions. Patients may struggle with hospital bills: some lose their insurance coverage, others might never have had any to begin with, those who have coverage may find that it’s insufficient. It’s not uncommon to hear how cancer has driven survivors and their families into bankruptcy.

On top of that, cancer can do a number on your career aspirations for years to come.

Money issues are one of the side effects of cancer that don’t get a lot of airtime…but really should.
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In case you think that it’s uncool to complain about one’s career in the face of having survived cancer, let me get this out of the way: being a cancer survivor is a privilege. I’ve written before about how acutely aware I am that I have lasted longer than many cancer patients.

But as the effectiveness of cancer treatments improves, the number of cancer survivors increases and long-term repercussions become a more and more serious consideration, particularly how they affect ongoing quality of life.

For people who are still working out their careers, cancer can derail progress because it plants a huge stop sign in their path.

Think of going into the chemo infusion room: the days leading up to it entail appointments, port placement, purchasing supplies (anti-emetics, anyone?) and in general prepping for being out of commission about a week.

It’s not the time to focus on stressful work deadlines (and most sincere condolences to any patient who has to do that!).

Ironically, as much as I feared infusions, they actually gave me an excuse to focus on myself instead of worrying about everyone else. I posted about that here somewhat sadly that chemo allowed me to rest without feeling guilty.

It was at that point that I’d realized I’d been pushing myself, always expecting more and not feeling like I was measuring up. Chemo gave me a break from that. Which was good…kind of…

But after chemo and radiation came endocrine therapy, so just as I was winding down from one set of side effects, up popped another.

Right? RIGHT?
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And all those plans I’d had for myself were put off again and again. Career goals seemed more out of reach because my timeline had shifted.

Well, I’m not stupid, so I changed my career goals. Makes sense, right? Cancer provided a different perspective on things and motivated me in another direction.

But in the wake of cancer treatment, I feel like I’m walking in cement shoes…if it’s not one thing it’s another. I got off aromatase inhibitors (early) and then realized that I was having memory and focus issues. Whether Cancer Related Cognitive Impairment (CRCI) or menopause-driven brain fog, all of a sudden I’m dealing with something else.

It feels as though the train to prosperity has left the station and I was just a little too late to catch it.

Great.

Right now I’m looking at sky-rocketing costs-of-living in a part of the country that literally got expensive around me. Instead of moving up in the world, my family and I are desperately searching for less pricey housing which will put us in worse conditions and a longer commute to work.

And at age 57, when most of my friends are looking at enjoying retirement in the years to come, planning for what they’ll do in their golden years, I’m trying to reeducate myself, shifting into a career that doesn’t make much use of previous work experience.

And it feel exhausting. Sometimes I want to cry.

I want to believe this, I really do. But I don’t think that there’s a reward for surviving cancer beyond simply surviving cancer.
(Photo by Nik on Unsplash)

Yes, I’m happy to be alive. But no, this was not the way I thought things would go. When initially I was told that I had a decent chance of surviving for five years, that was all I could think about. In fact, that was all that mattered.

I wasn’t thinking about the fact that if I managed to live through this, I’d still need to find a way to make a living. And the interruption that was cancer could do a number on that.

At this point, I need to stress that my intention is *not* to try to scare cancer patients into dreading survivorship. Goodness knows, there are enough things to navigate within the cancer experience as relate to the usual treatments that will take your energy and attention.

I wish nothing less for you than 100% remission and many years ahead to enjoy your “survivor” label.

At the same time, I encourage you to remain present and mindful of the fact that you might have to pivot if you’re not already well-established in your career. If things start to change in a direction that’s southward of what you expected, be patient and readjust your expectations. Nuture acceptance and keep an eye on how you can put yourself in a good position to meet the future. And be kind to yourself.

I’m still working on it.

The Satisfying Pleasure of Letting Go

If you’ve read my last couple of posts (here and here), you’ll know that I’ve been dealing with the frustrations of water leaks, never-ending renovations and unfortunate coincidences.

Hopefully, this will be the third and last installment of the trials and tribulations concerning this situation. But just to catch you up, the cabinets which were supposed to be installed Thursday, not in time for our houseguest’s arrival on Wednesday, but just a day late…were not.

Yet again, there were dashed expectations: one of the cabinets arrived with a crushed side and was unable to be used. So the innards of these cabinets are still piled up on and under the dining table and the place looks disheveled.

When things start blowing up, sometimes all you can do is sit back and enjoy the show.

And due to the completely unrelated construction taking place outside, which will prevent daytime access to our unit for several days, there will be no cabinet installation for at least another week, regardless of when the new cabinets come in.

But you know what? It’s okay.

I had wanted to have everything put together for our guest. That was not possible, so–admittedly after much jaw clenching–I completely let go. The crushed cabinet, the disruptive construction, I’m simply accepting it and that feels so good.

It really doesn’t matter when the cabinets are put up or what other monkey wrenches are thrown into the mix. We’ll get to closure when we get there.

Which is a good thing because on Saturday evening, I discovered another leak in the walls that soaked the new (still unpainted) drywall and flooded out the unit below us. And I’m totally serious. The inside of our hall closet sounded like a rainstorm.

Well, we needed rain…

I guess I could have been more stressed about it, but with everything that had already taken place, I shrugged. We notified out unit owner, we called the plumber, we waited for the leak to be fixed.

Another day, another leak, another disruption, another hole in the drywall. Still okay.

These are still problems that need to be dealt with. But whether it’s skillful mindfulness (probably not) or simply emotional exhaustion (more likely), it’s not getting to me and it feels amazing to stay calm under such circumstances.

I know I cannot avoid stressors in my life. So I’m trying to remember what this feels like. If I can draw on this experience the next time an upheaval occurs, perhaps I can slip into gentle acceptance and let reactive anxiety pass me by?

Managing Expectations: A Reflection

As I sit at home waiting for the stormy remnants of what used to be Hurricane Hilary to pass by, a bit of reflecting…

There is a saying attributed to Buddha: “The root of all suffering is attachment.”

While there is much that can be and has been written about this, I’d like to bring it down to something very concrete in my life.

It seems so simple, this letting go of our expectations. But we humans are hard-wired not to do that!

One of the wonderful attributes that we as humans have is the ability to plan. Yes, that’s been evidenced in very clever animals, but humans take it to a whole new level.

Where that incredible gift fails us is that in the process of planning, our goals and expectations become very real in our minds, and if they don’t play out as we had anticipated…well, sometimes we don’t deal with the disappointment well.

For instance, in such situations I experience stress and anxiety. Others may react with anger and frustration.

Regardless of the outlet (whether handwringing or yelling), it’s safe to say that the outcome is not pleasant for anyone. And yet letting go is hard when we are really counting on the expectation being realized. Or perhaps even worse, when we get lost in thoughts of how things could have been.

Consider this scenario: let’s say that following a leak in our apartment and subsequent slow repair process, two months later our water-damaged kitchen cabinets haven’t yet been replaced.

But wait, I get word that the cabinets are coming finally coming in this Friday, August 25th and will be installed the following Monday (28th)! Expectation established! And it’s not a small one because most of our kitchen and the entire dining room have been sitting in the living room area for over eight weeks.

Oh, how difficult it is to sit with what’s happening in the present moment — we’re always looking to see what’s up ahead or somewhere in the past. The greatest peace I’ve ever felt is to simply be here.

WOW, do I want this to get fixed! We have a house guest arriving on Wednesday the 30th who is supposed to sleep in the living room. Weeks ago, when she arranged to visit, I was sure that all the repairs to our apartment would have been done long ago. But now, between the cabinet installation and her arrival, I don’t have a lot of time to clear out the mess and get everything back in its place.

I cannot let go of the need for everything to go smoothly. But while I’m struggling with the burden of that need, I’m simultaneously living through the stress of, “oh no, what if it doesn’t work out that way???”

So there you go, a double-whammy. All this because although I know better, I latch on to how I want/need things to be. Either expecting perfect success or total disaster.

Letting go will never be as easy to do as it is to talk about. But in my brightest moments, I am able to step outside the confines of my thinking, move out of myself and get perspective on the present situation, accepting that I cannot predict and shouldn’t expect too deeply. That’s when I experience the highest level of calmness.

And then, as will happen, I forget and sink back into my small, highly personal mind, where I once again cling to having things be a certain way.

Hang On, Honeybee!

A few days ago, I took my daughter to the train station, about a 7-mile drive.

As we pulled out of our driveway, I noticed a honeybee on my side window, close to the middle of the pane. It was a foggy morning so the little girl must have lost her way.

In the past, when I start accelerating and there’s a bug on the glass, the insect takes off (or the wind “encourages” her to take off). But not this little bee. She hung on tightly.

Part of the drive was along a stretch of road with a faster speed limit, reaching over 50mph. I wanted to get my daughter to the train early, so I couldn’t drive much slower. At the same time, I was getting very invested in the bee, still hunkered down and holding on.

My daughter suggested that we take the freeway for part of the trip, but I protested, concerned that the bee’s grip wouldn’t be able to handle the acceleration.

Through faster and slower speeds, my tiny hitchhiker clung hard. Her little wings seemed to be fluttering, battered by the wind, but she was not letting go.

She made it all the way to the train station, holding on like crazy! My tenacious little girl! Then took the opportunity to clean herself up. ❤

And then we finally arrived at the station. My daughter made her train with time to spare and I sat in the lot nearby waiting for it to depart. In the meantime, my little bee had started to preen herself, cleaning up her antennae and straightening the hairs on her legs.

I was so impressed with her ability to hold on!

By this time, the fog had lifted but it was still very cloudy–not proper bee-navigation weather. And I was concerned that if the bee took off from the station, 7 miles from home, she’d never find her way back. I needed to return her to familiar lands!

When we returned home, she sat very still. I held my breath.

Now I was 100% into this. And apparently, so was my little bee. Because in the process of grooming she had edged closer to the frame of the car window. Smart girl, because that meant less air resistance! As I started driving, she expertly tucked her wings together, widened her stance, and…if a bee could give a thumbs up, I’m sure that’s what she’d have done.

On the way home, I drove a little more slowly, trying not to go over 40mph and a lot slower whenever possible. She looked determined to make it.

But when I pulled into our driveway and parked the car, she and I both sat motionless. C’mon, I thought, you’ve made it this far. You’re home. You’ve got to be okay!

Looking more closely it seemed like one of her legs was moving, perhaps twitching a bit. But nothing more.

I wasn’t going anywhere until I knew all was well. At that point, clouds were starting to thin and the outline of the sun becoming visible through them. THE SUN! Coming to the rescue!

My little heroine recovered and immediately took to smoothing her antennae, as if 14-mile journeys were an everyday thing. ❤

Eventually, my little bee started straightening her hairs again, then grooming quite vigorously. The air was warming, the sun was coming out, and my darling girl was getting herself together after taking a battering on the road.

Finally, the sun was bright enough to cast shadows, increasing in strength by the minute. And my bee, stalwart little travel companion, walked up the glass onto the door frame to finish warming up.

One last view of her as the sun was coming out. She was vigorously brushing through her hairs and antennae. Ready to return to her sisters and charm them with stories of where she’d been, what she’d seen and how she’d held on. ❤

I returned to my apartment feeling uplifted by the tenacity of that little creature. She had a purpose and was committed to it. What a beautiful analogy for holding on when we think we can’t go any further, when no one would expect us to keep going. Even then, we manage. Because no matter how bad things seem, the sun will come out and we will find our way home.

From a Safe Distance

It’s hard to believe that six years ago I was a week and a half away from my final chemo infusion, in the thick of being a cancer patient with no idea of what tomorrow would bring.

Cancer survivorship used to be a whole lotta “looking over your shoulder” for the next thing to hit.

I also thought that I’d live the rest of my life, however much or little of it there was left, in fear, always looking over my shoulder to see if cancer was close behind. In fact, after my active treatment was over, I expected that my anxiety would increase because I imagined that whatever had triggered my tumor growth would again be unleashed and ready to attack my again.

And when I had to stop aromatase inhibitors early due to side effects, I envisioned even more terror because I wouldn’t have the medication’s protection anymore.

None of this suggested that I would have a very pleasant future. Either I would get cancer again…or I’d be consumed by worry over getting cancer again.

Reality turned out to be quite different.

The more (1) I practiced being present, coupled with the (2) increasing distance between my last dose and today, the easier it has become. Now, that might sound like a no-brainer, but it was news to me.

And I don’t know exactly when I turned the corner on my fear but it was probably after the worst letrozole side effects ceased and I was able to reflect on and accept that cancer happened and now I was moving past it.

It took years to get to that point, but it would have probably come sooner if I hadn’t convinced myself that I’d never get there.

And how are things different now? I don’t think of cancer every minute of every day. And when I do think about it, it doesn’t seem as daunting.

I realized this after meeting a cancer survivor who works at a store that I frequent. She revealed that she’d just received her three-year “all-clear”. The relief on her face was unmistakable.

And it struck me that I used to have that incredible sense of gratitude too. And I still kind of do for a short bit, but it fades quickly as I turn my focus to the rest of my daily responsibilities.

Yes, I am still seeing my oncologist twice a year, having annual 3D mammograms AND the occasional MRI, so it’s less likely that something’s going to sneak up on me. But the concern is no longer as all-encompassing because it doesn’t feel as likely.

Of course, I could be kidding myself. Even after six-plus years I know that every set of scan results is a door to either “no evidence of disease (NED)” or “we’ll get you in to see the oncologist ASAP”. So far I keep going through the NED door…and it keeps opening onto a bright day.

In the midst of taking things for granted, it’s nice to stop and think about that.

We’ll See What Happens…

As the saga of our building’s leaky pipes continues, this experience reminds me of some of the best advice I received for getting through my cancer treatment.

How could cancer relate to a plumbing emergency? In how I perceived the news and possible outcomes. My cancer diagnosis was terrifying because I had grown up understanding that the disease meant difficult treatment and a real possibility of death. Now that I was dealing with cancer, I was jumping to conclusions, driven by FEAR.

And the leak in our unit? That meant a huge disruption in our lives as workmen enter and our belongings are piled together. But even more so, FEAR of the future, as we didn’t know the extent of the damage and whether we’d be able to to keep living here.

Getting a first glimpse of restoration. Lost some ceiling, light fixtures and a lot of kitchen cabinets.

The thought of moving brought anxiety about higher rental rates, dealing with belongings after nine years in the same apartment, even simply fear of change and uncertainty.

But that best bit of advice that I mentioned above? I found that it applied well to this situation also. And it goes like this: don’t try to tackle everything at once; take it bit by bit.

When I was diagnosed with cancer, the experience was nothing if not overwhelming. So many new terms, treatment options, possible outcomes. It was too much to handle. Someone I worked with suggested that I deal with things on a day to day basis. Not obsessing about the future, only what I needed to get through for today.

This was not easy for me, as being FEARful came naturally to me. But I understood what he was saying, even if I struggled to actually follow this advice at the time.

As with cancer, so with plumbing. My mind had already “gone there”, struggling to afford another unit (this is an older unit with rent lower than other places around us), staying up day and night to pack. Ending up in an even worse situation with inconsiderate neighbors…

But reality was not like that.

Behold, the FORCE AIR 2000EC! This monstrosity is the heart of the asbestos abatement operation. The workmen couldn’t fit it back in their truck so we’re babysitting it for a couple of days. Also, it looks like it was built by orks, but that has nothing to do with anything.

Within a weekend we had moved much of the kitchen and dining area. And really overhauled our possessions — even something as complicated as draining our 20-gallon fishtank and relocating its inhabitants to my husband’s office was not as difficult as anticipated.

I had time. I had time to move things, I had time to reorganize, to declutter, to stop and think about what was next. I had time because it wasn’t all happening at once. Stopping and breathing and noticing all the space around gave me space inside my head.

Discussions with our landlady suggested that we would take it one day at a time. No one was throwing in the towel yet…

…and even if the worst case scenario happened and we had to move, there were other places that were available (all with air conditioning, which we don’t currently have), and the rental cost would have been similar to what we pay now. In some cases the places were newer and most allowed pets (!), which I’ve been longing for.

All of a sudden, things didn’t look that bad. The options seemed promising.

Taking it bit by bit gave back a sense of control. All those fears slowly fell away.

And now, I find myself hovering with acceptance. Not landing on an expectation that THIS or THAT will happen. I don’t know what will happen and I’m finding a comfortable place to simply hang here, not gripping or holding on or needing for anything to be different.

We’ll see what happens…

Things I Wish I’d Known About Breast Cancer, Part 1

Cancer, perhaps more than any other disease, has a formidable reputation that precedes it. Because of this, cancer “lore” can affect your expectations of treatment effects and anticipated prognosis if you are unfortunate enough to receive a diagnosis.

There were a number of things that I didn’t realize about breast cancer that might have made my experience, if not better, at least slightly less harrowing. Here are a few of them, in no particular order:

1. Breast cancer research remains more highly funded than that any other cancer (source: 2019 Northwestern University estimate) and is therefore the best-studied type of cancer. As a result the treatment plan is solid. While this does depend somewhat on the type of breast cancer you have (Triple-Negative, Triple-Positive, Hormone Receptor-Positive, Inflammatory, etc.), the fact remains that there is great interest in “saving the boobies”.

We are living in an era where research in breast cancer is churning out valuable findings at a break-neck pace.

Your treatment plan has likely been well-tested with ample positive outcomes. Combine this with the tendency for this cancer to be diagnosed at earlier stages due to the relative ease in finding a tumor (I mean, you can feel the lump even if it’s not very big), survival rates tend to be very good. Understandably, that might not be very comforting at the time that you’re hit with the news that you have breast cancer, but it is a blessing that you’ll appreciate later.

2. Getting breast cancer is not your fault. I struggled with this one for a loooong time. If you’ve read some of my earliest posts, you know that I not only had a hard time getting my head around my diagnosis, but also a lot of anger about everything I did that was considered “protective” that seemed not to make any difference.

The reality is, as much as we do know about cancer, there’s still a lot we don’t, which means you can be doing everything right — even “perfectly” — and still be diagnosed with breast cancer.

The message I got from cancer-prevention campaigns was that there was so much you could do to avoid the disease. I checked off all those boxes and thought that I was at very low risk. I was “the fit one”, the vegetarian, a dutiful breast-feeding mom allowing myself no indulgences — the last person you’d imagine this happening to, but it did.

I felt ashamed about the diagnosis, even feared that I would be accused of lying about my healthy habits. I was terrified that my healthy lifestyle had somehow backfired. While this sounds ridiculous now, feeling so out-of-control about my own health was demoralizing and depressing.

3. A healthy lifestyle goes a long way in making recovery easier. While I felt dejected about not being able to avoid breast cancer, my exercise and dietary habits helped me recover from treatment side effects faster and not gain weight afterwards. And as I learned later, by maintaining an active lifestyle, I was significantly decreasing my chances of cancer recurrence. I wrote about those findings in this post.

So all my efforts were not for naught. Word to the wise: if you don’t exercise regularly, start now. If you do exercise, keep going!

4. There is light in dark places. I must stress that cancer isn’t some “great” thing that happens to you and it carries with it big side effects and an ever-present risk of death. I lost two friends to breast cancer who were both diagnosed about the time that I was and they were far too young to die.

But given that I had to go through this, I had the option of “sink or swim” when it came to how I would view my experience. Eventually I found the light in the darkness of the cancer tunnel, but it did take a number of years and many ups-and-downs before I was able to appreciate the lessons that the disease taught me: being able to accept and live with uncertainty, identifying a clear purpose in my life, finding gratitude in small things, even coming to grips with my own mortality. These lessons were difficult but also valuable, and I admit that I wouldn’t have learned them if I had not gotten cancer.

Perhaps some of the most important of these were identifying that I had suffered from anxiety for a good part of my life and understanding how it had shaped my decisions. Yes, it took cancer for me to realize all that! This led to incorporating mindfulness and meditation into my daily routine.

And that is a very positive thing indeed.