Tag: Grief

“It’s Not a Toomah”: My Aura Theory

(Title image: Photo by Daniele Levis Pelusi on Unsplash)

I’ve written in my blog that I was experiencing strange visual disturbances, most likely visual migraine auras. Note: I’ve never experienced migraine pain.

This is particularly worrisome for me as a survivor of triple-positive breast cancer, as there is a greater chance of that type of cancer metastasizing to the brain. Presumably, a growing tumor could restrict blood flow to areas of the brain that could result in me seeing strange things.

This was of great concern to my ophthalmologist. However, there was no pain associated with the auras, and pain would have been expected (but not necessarily required) if the auras were caused by a tumor.

There were other confounding variables, too. Since the summer of 2024, shortly before my father’s death, I had noticed that I was doing a lot of involuntary “sighing”. I’d experienced this type of sighing before, but this time it kept going for months, sometimes occurring a number of times an hour.

Naturally I googled it, and Dr. Google pointed out that excessive sighing was potentially associated with undiagnosed anxiety and depression. When I finally started writing out all my stressors, it because obvious to me that I had been far more deeply affected by what was going on in my life than I imagined.

So, after my appointments on Nov 22, I took time to grieve my father’s death, which I hadn’t done up to then. I thought I had accepted his passing and moved on, but clearly I hadn’t. I sought hugs and solace from family members and expressed what I was feeling.

My last aura was on Nov 29th. After that, along with allowing space for grief, I expanded my time in meditation, added up to an hour of breathwork a day and even included a daily cup of ceremonial-grade cacao (for the theobromine).

Mindfulness took a front seat. I paused at various points of the day to simply take deep breaths. I paid attention to what my body was doing and what thoughts were running through my mind. I made a concerted effort to show compassion to myself, more than I had in a long time.

The auras did not come back. As of this writing, it has been 45 days since the last aura. I had been having them once a week, and at their worst, a couple a week and even two on one evening.

I am well aware of the power of the mind. My educational background is in graduate-level psychology and I myself have experienced psychosomatic pain before. But honestly, I never expected to have such a striking response to anxiety/depression/grief.

I have searched for a good visual representation of an aura and it’s hard to find one that actually reflects what I was experiencing. It was something like this:

This is not exactly what it looks like for me, as some of my auras have been “thicker” and more “stained glass-like” in color, looking more zigzagged (as if the entire half-circle is made up of triangular pieces of vividly bright LED-like colors). Also, mine were gone within about 20 minutes.

That’s not an insignificant reaction to something that is going on in my head. My brain created those auras. That is amazing.

I should mention, I never had an MRI so technically a tumor cannot be ruled out. And neither can some other cause that I have not considered. However, the fact that my auras stopped after I put concerted effort into exploring my anxiety, acknowledging depression and recognizing that I was not okay with the pressures I was under suggests that it’s probably not a tumor.

Making a List, Checking It Twice

(Title image: Photo by Kelly Sikkema on Unsplash)

I have been stressed lately, which is a bummer because this year I really wanted to relax and enjoy the holiday season. But once again, it seems like the year has some zingers left for the final months of 2024.

Instead of writing about them in a post, I decided to write them down…and I was surprised by how many stressors had built up.

I made my list carefully, organizing it by time periods: first, I wrote down the things that had been nagging me all year or longer. Stuff like constant increases in rent and cost-of-living. These were exerting continuous pressure on my well-being.

“Dear Santa, please don’t bring me any more stress. I’m good for this year.”
(Photo by Mike Arney on Unsplash)

Second, I wrote down things that seemed to have happened in the second half of the year and had a large impact, like my father’s death and experiencing frequent visual migraine auras.

Third, I got more granular and wrote about the things I was experiencing on a daily basis. Like feeling that my words were misunderstood or having to go through the rigamarole of tracking down a package that hadn’t arrived—these are things that work themselves out in a relatively short period of time but are stressful in the moment.

Why bother listing all this? Because it helps sort things out. I get perspective on exactly what’s going on in my life. Without that, it’s like someone throwing a huge blanket over you—suddenly it’s dark and you feel smothered. And that feeling of overwhelm elicits a lot of anxiety.

And once I had started the lists, I considered how I was reacting to these stressors. For example, since my father’s death I had not given myself the opportunity to grieve, not even during the funeral. There were so many other concerns that it didn’t seem like it was “the right time”.

So over the last two weeks, I gave myself the space to cry. If I hadn’t stopped to consider what was actually going on, I might have tried to soldier on and pushed away how much it hurt. I had been affected by not only his loss, but also by how his gentle nature meant he didn’t push back against forces that led him to forsake his own passions, and knowing that compounded my pain.

Ah, here comes that word again: PERSPECTIVE. You really don’t get the whole view until you step back and quietly observe.
(Photo by Brigitta Schneiter on Unsplash)

But the reactions don’t have to be as heavy as that. I also noticed that I had been doing a lot of sighing this year, something that is associated with stress and anxiety. Even my body was trying to tell me to take a break.

Writing out the lists gave me a chance to acknowledge what I was already feeling, and pushed me to evaluate whether what I was doing to relieve my stress levels was effective enough for what was going on.

It’s important to note that the purpose of writing up these lists is not to wallow in misery! Everyone has stress of some kind and I’m not unique in that, nor am I trying to make this a bigger thing than it is.

The fact is, some stressors happen to me and some I impose upon myself (unrealistic expectations, perhaps?). It is only when I am able to review them that I can determine which is which, and then take appropriate measures to alleviate whatever pressures I can.

A Rock in a Bubbling Stream [Visualization]

(Photo by Hendrik Cornelissen on Unsplash)

There’s a lot going on in my family at this time, most importantly the transition of my father to in-home hospice care, signaling that a life chapter will be coming to a close. That’s one of those things that you know is going to happen but usually don’t want to think about.

It’s these kinds of changes that unsettle us the most because they’re significant shake-ups of life as we know it. In the case of my family, this change was not unexpected and yet it is still not easy.

The uncertainties associated with end-of-life issues can be unsettling.
(Photo by Pylyp Sukhenko on Unsplash)

But I can draw on my meditation practice and ability to stay present to accept things are they are now.

It helps to use a visualization in the midst of emotional upheaval. So I think of myself as being a rock in a rushing stream. You know, one of those rocks that sticks out about the water’s surface and might serve as a comfortable sunning place for a river turtle.

The rock sits still even thought there is a rushing tumult all about. The water parts around it and then rejoins on the opposite side, but the rock remains there, unmoving and unbothered.

The rock doesn’t hinder the flow but neither does it get carried away by it. And as it sits, so do I, observing and understanding and accepting everything that is going on around me. Not getting caught up in my head and taken away by thoughts.

Mindfulness meditation provides me with a stable rock from which I observe the tumult of life as it rushes by.
(Photo by Simon Berger on Unsplash)

There will come a time to grieve but now I focus on what is happening in the moment and how I can support my parents. There is gentle planning as I get more information about the situation. And always, taking deep breaths, feeling into my hands and feet, staying grounded. From this vantage point, I can clearly see what needs to be done today.

“This is what’s happening now. Tomorrow may be different, but at this point in time, I am here.”

So the coming weeks may bring shorter posts, perhaps a skipped one here or there. There will be much to do and it will all get done in time. Decisions will be made as they come up. Focus remains on each task at hand. Even if responsibilities come fast, I find a stable base in my practice that helps support a strong relationship with my family.

The river rushes relentlessly. But I know it’s there and expect the constant movement. Changes become familiar, fear drops away and I am comfortable where I sit, calm as I watch the waters flow past me and then continue onward.

Permission to Grieve

I feel like I write a lot about loss when speaking of my cancer experience. That may seem like a downer, but truly, cancer treatment is a complicated process in more ways that expected. Bear with me for a few…

There’s so much to lose: lose control of your life, lose your hair, lose your lunch, lose a lot of money, lose time at work, lose your libido, lose your overall quality-of-life. In more extreme cases, lose your spouse and your house. And unfortunately, sometimes lose your life. On some level most of us may feel some sense of loss.

Cancer is complicated because it can bring on a huge sense of loss.

I keep talking about this because it’s not something that’s fun to talk about. Most people don’t know what to say when they find out you have cancer. They’re hesitant to say something to “remind you” of the illness, as if you could forget. Relationships can become strained and awkward.

Interactions with cancer patients often turn into a “rah-rah” fest, with well-meaning friends showering you with “you got this” encouragement. But that’s not always what you need to hear.

I urge everyone who cares about the well-being of a cancer patient to allow them the opportunity to express how crappy things are. To simply listen and not contradict them. Because being insistent that it’s not okay to talk about anything negative creates an even bigger sense of loss for the patient.

Does this sound wrong? We’ve been led to believe that being positive is the only way we should be and that it’s no fun to be around those who are gloomy.

But consider this: would you go to a funeral and try to get the grieving family to “cheer up”? Would you try to tell them jokes and elbow them into smiling? I don’t think you’d be very successful and might be escorted away – at the least your invitation to the meal afterwards would probably be revoked.

Forgo the cheerleading and simply offer an ear and a shoulder.

We know that behaving this way is unacceptable, at least in most cultures (I can’t speak for everyone). Grieving is an important part of the human condition and not being allowed to grieve loss can be very stressful and lead to problems down the road.

So it is for the cancer patient. There’s so much more going on than simply increased doctor visits and medical procedures. Minimizing the impact that this has on their lives may range from feeling unfair to devastating.

Of course, every patient is different and their reactions will differ too. But I would urge loved ones to err on the side of caution, give their cancer patient the time and space to process and grieve and save the exhuberant “cheering up” for a time when the patient seeks that out.

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Ok, ok, the “loss of body odor” is one loss that’s not so bad!