Helplessness – Frantic Shanti

Revisiting Radiation Tattoos

^{(Title image: Photo by FlyD on Unsplash)}

I came across a story from November 2024 about actress Nicole Eggert (“Baywatch”, “Charles in Charge”) discussing her breast cancer diagnosis.

While I admit that I hadn’t watched any of her acting projects, I could completely relate to her reaction to preparing for radiation therapy.

The article focuses on an Instagram post that she made after leaving a doctor’s appointment during which she received her radiation tattoos, expressing surprise at the fact that they were, in fact, actual tattoos.

As the article continues, “She then started to cry as she realized just how permanent the tattoo would be. ‘And it’s minor, it’s nothing but dots, but boy, every step of this process is never gonna let you forget it, there’s just always going to be a constant reminder.’”

This really resonated with me because I had a similar reaction to getting my own radiation tattoos. I had never had an interest in getting any kind of tattoo myself. But now, with cancer, nothing was under my control anymore. It felt like my body was not my own.

Nope, never wanted a tattoo. But had to get four anyway (minus the pretty flowers).
(Photo by Lucas Lenzi on Unsplash)

And I remember being told that now I was going to get tattooed, just like that. No fanfare or anything. I don’t remember being told in advance, although I would not be surprised if I had and it simply hadn’t registered. I felt helpless a lot of the time and I had hoped that after chemo I could get a sense of self-ownership back. But the tattoos were a big “NOPE” to that!

I agree with Nicole, it’s the permanence of these things and even the long-term nature of some of the side effects of cancer treatment that add to the emotional impact of the disease.

I don’t know much about Nicole’s tattoos, but because I am pale with lots of moles already, my tattoos were blue to distinguish them from everything else on my skin. So while they were just small dots, to me they were very visible when I looked in the mirror.

My post about the experience (“I Didn’t Expect THAT: Radiation Tattoos“) talks a bit more about this. Now, almost 8 years later, I’ve made peace with the blue dots in the same way that I’ve tried to accept my scars and aches and whatever else has hung around since treatment.

Made peace, yes. But like the tattoos, although their sharpness fades, the memory remains.

“Dropping a Plumb Line”: Dealing with Disappointment

This is a follow up of my last post, where I described the unending saga of unfinished repairs following a leak in our apartment, something that left me feeling helpless.

Before I posted last week, I removed a section that I’d written about fears of kitchen cabinets not arriving on schedule, and that they’d be hung after our upcoming houseguest had arrived and the place would still be torn apart. I cut it out because I thought, “Come on you’re catastrophizing, no one needs to read about that.”

Except that that’s exactly what happened. I got a call that there was another delay. All the expectations I’d had came crashing down in one big pile of disappointment. That is, disappointment mixed with shame, self-judgment, embarrassment, depression, etc. because I’d mixed so many feelings of self-worth into having our apartment be fixed up prior to our guest’s arrival.

This was something so biting for me as a middle-aged women who, despite being an employed “professional”, was still locked into the idea that whatever else I accomplished didn’t matter if my home wasn’t in guest-ready condition.

I tried to do a meditation on imagining what it would feel like if everything that had happened was the way it was meant to be, but I couldn’t even muster that feeling of acceptance.

Again it was the expectation, the need that I had to have things be different. I tried sitting with my disappointment but the feelings were sticky and pulled me down even more.

So then I thought, if it’s the unrealized expectation that I had, the one that had built up over the last two-plus months of restoration agony in which I had no control and was at the mercy of the HOA, our landlord and anyone else…how do I soften that expectation to make this better?

Oh, how differently things look when you drop down into a situation without prior expectations.

I regrouped and tried meditating again, but this time I was dropping straight into the situation, vertically, without those weeks of built up frustration and need. As if I were sitting on the tip of a plumb line, called into action and ready to problem-solve.

What would it feel like to come into this situation right now? If I were to start out by knowing that I’d have to deal with the kitchen being in boxes in the living room area where our guest is supposed to sleep and then move forward from there.

I imagined myself arriving without baggage and it felt so much better. Suddenly, my focus was on dealing with the situation instead of lamenting about how things could have been. This was more productive and less agonizing. Yes, potentially still frustrating, but it took me out of the magnified disappointment that didn’t even make sense from this perspective.

It was such a small shift but it made a significant and immediate difference. That emotional wall that I’d been hitting fell away and I could see solutions. And now things didn’t look that bad. Yes, things looked different but given that I felt so much better and more in-control, this was the best outcome that I could have expected, given the situation.

Again, perspective came to the rescue and I was reminded that there is always a path out of every situation if we give ourselves space to consider it.

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And now, off to clean the bathroom.

Invisible Effects: Helplessness

Suffice it to say, simply having cancer can leave you feeling helpless. Ignorance of the cause, uncertainty about the future, fear of treatment effects — that lack of control is frightening. But that’s not the helplessness that I’m writing about here.

In my last post on chemo brain, I alluded to the disorientation that comes from distractedness, brought on by lasting effects of chemotherapy on brain function. Here, I want to drill down and describe the feelings of helplessness that arise.

In WHY Did I Just Do That?, I wrote about a humorous dream in which I couldn’t understand the reasons for my weird behaviors. But the more sobering side of this is that I often feel that same way during my waking hours. There are things that I’ve done — treating a red light like a stop sign, as mentioned in my previous post — that make absolutely no sense to me and make me feel like I’m not in control of my own behaviors.

To make matters worse, I am not aware that I’m doing anything wrong (or dangerous or illegal!) at the time. When I realize what I’ve done, I’m horrified. Want to feel helpless? Not being able to trust yourself is a pretty good way.

I’ve been told that the main issue is loss of focus. Mindfulness helps immensely in these types of situations, but as anyone who has practiced mindfulness can tell you, you can’t be mindful 100% of the time. In my case, I’m fearful that this distractedness can put others or myself at risk.

Want a few more examples? Some are rather benign, like almost flooding the bathroom because I left the water running in the sink. Or writing an important email and leaving it unsent. Most of us have done something like that at one time or another, likely due to juggling too many tasks at once.

But the things that leave me feeling desperate are the ones that are not easily remedied. Having to learn things over and over again because I’m not retaining information. Having trouble expressing myself and not being able to retrieve words. After working as an editor at one point, this is unbelievably disheartening.

However, one event topped them all: I fell for a (well-designed, admittedly) bank scam where I gave out my Social Security Number despite having taken my work’s cybersecurity training course the previous week, and having received constant reminders from my bank that they will never ask for my SSN over the phone. Besides making me feel unimaginably STUPID, it cost me a good deal of money, time and nerves.

“Helpless” is not even the best word to describe how I feel. “Hopeless” is a more apt term. “Exposed” and “vulnerable” work too. This begs the question: how much more damage will I do to myself before things start improving? I should be working full-time instead of part-time, given the cost of living in my area. But how can I even think of looking for another job when I’m on such shaky ground? Cancer knocked me down in ways that I never anticipated. Yes, I’m grateful for being alive, but YEESH!

Building new neuronal connections, identifying what aspects of my memory issues are most severe, practicing mindfulness as much as humanly possible — it will take all that, along with a healthy dose of patience, to start seeing improvement. Hope I don’t get distracted and drive off a cliff before then.