8 Year Cancer-versary and Everything Hurts

(Title image: Photo by Nick Fewings on Unsplash)

This past weekend marked eight years since my breast cancer diagnosis and I recently had another oncologist appointment.

Over the years my appointments have become lighthearted. This one was not so much.

While I was concerned about the migraine auras that I’d been experiencing in the fall of last year, my oncologist had called me in November 2024 with the results of my bone density scan: I’d lost more bone and was deeper in osteopenia.

To be fair, I don’t even know how much more. It had been strange to find myself labeled with osteopenia when I had my first bone density scan over five years ago. Neither my oncologist nor I could understand it. I live a very active life with frequent workouts, including a lot of strength training. By all accounts I should have strong bones. At the time, we figured it was something to do with algorithms applied to the bone density data and my bones were actually in better shape.

Ow, ow, ow, ow, ow!
(Photo by julien Tromeur on Unsplash)

This time around, it was worse. Since the first measurement, I’d had two years of tamoxifen and one of aromatase inhibitors. That didn’t help. But all the exercise? Did it not matter? Apparently not enough.

That was frustrating on its own. But to add to that frustration, I’ve been hit with injuries. My left shoulder, my left hip and most recently my lower back.

Each one of these has taken a toll on my exercise schedule and I will likely have to seek out physical therapy for at least the shoulder. At least. The hip I have been able to manage to a certain extent. Then I tweaked my lower back rowing about two weeks ago…I kept working out, more gingerly for sure…until I managed to re-tweak my back because apparently I am incapable of leaving things well enough alone.

On the bright side, the pain in my back made me completely forget the pain in my hip. Which is not to say that there is no pain, just that it pales in comparison to back spasms.

My oncologist offered to order a spinal scan for me. I graciously declined—I’m pretty darn sure it’s just my back muscles—but his concern is valid. If I’m lifting weights with increasingly porous bones, he’s worried about spinal compression fractures.

I guess he won’t have to worry about it now. I’ve been smacked in the face with a healthy dose of humility. No, I had no intention of pulling back on my workouts, but doing so is unavoidable. The amount of weight I can lift without injury has steadily decreased (injury by injury) and with this last helping of pain, I have to face reality. I need to completely rehaul my workouts along with my expectations.

Just sittin’ and chillin’ and dreamin’ of strong bones.
(Photo by Anne Nygård on Unsplash)

Perhaps most importantly, I need to not view this as a failure on my part. Because while I knew that eventually that day would come, I was not prepared to actually accept that it was here. I was still trying to “work my way back up” to where I was before, even when I knew that it was unrealistic.

After all, I remind myself, the fact that I need to adopt a slightly gentler approach to my workouts is a sign of success: the reason I need to be more careful now is because I have survived this long past my diagnosis. That’s not a punishment or a capitulation. It is, in fact, a blessing and a luxury that many cancer patients don’t have.

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What now? I am resistant to bone-building bisphosphonates at this time, for a variety of reasons (hello, side effects). I want to see if I can stop/slow the bone loss on my own. I have the exercise part down, no problem. But to be completely honest, my dietary intake of calcium was very low. I had every intention of supplementing with calcium after my first bone density scan, but got spooked by the potential for heart issues.

Since then, I’ve learned about the importance of Vitamin K2 and the Japanese fermented bean natto, which has loads of it and makes sure calcium gets to the bones instead of the heart. I’ve re-started the calcium supplements with a daily serving of the fermented stuff. You could say, I’ve become an aficio-natto.

And now that I am forced to back off the intense exercise, I have the opportunity to focus on mobility work, stretching and rehabilitation as I discover what body parts are going to need the attention of a physical therapist. We’ll see how this new approach to fitness works.

Farming ‘Likes’ on Instagram

(Title image: Photo by Chelsea Gates on Unsplash)

I am a reasonably flexible person although I’ve become less so with age and especially following cancer treatment. Yoga asanas that I used to be able to do…well, they don’t come so easily anymore, if at all.

After going through my yoga teacher training in my 50s and now in the middle of an Oncology Yoga (y4c) certification program, I spend a lot of time feeling like an imposter.

There’s an element of shame to this. I tell myself I should be more flexible, I should have better balance, I should be able to hold more advanced poses and for longer.

In my y4c training, the manual referenced a concept, versions of which I’ve seen before and have written about myself, but the message continues to hold true (see this article). The proliferation on social media of young, flexible bodies in extremely inaccessible poses for the vast majority of the population not only hurts the practice, but completely misses the point.

It seems like a lot of images that show up as “yoga” on platforms such as Instagram are part (if not wholly) acrobatics and contortions. But yoga is actually a spiritual practice and only one part of it, the one that is overemphasized in the west, is physical.

POV: You’re a cancer patient and your forward-thinking oncologist suggests that you try yoga to help alleviate some of your side effects. But this is what you think of when you hear “yoga”. What are the chances that you’ll try a yoga class? What are the chances that you’ll even find a yoga class that is appropriate for your current condition? Or will be able to afford one?
(Photo by Wesley Tingey on Unsplash)

And that physical practice is a big money maker. If you doubt that, take a look at how many yoga studios exist in affluent areas, and the dearth of studios in more moderate-to-low valued ones.

Yoga was what helped me through my cancer diagnosis, treatments and beyond. But that yoga was minus the “workout”. My workouts during cancer focused more on rowing and lifting weights rather than Sun Salutations and balance asanas. Yoga was for my mind and spirit, to maintain connection and grounding, to not get lost in my fears and to be grateful for what I had.

This is not to say that it’s not impressive when people post challenging asanas on social media. Some of the wonderful teachers that I have trained with have shared those kinds of posts. It’s natural to want to show off a physical achievement that you’ve worked so hard for. In a way, that’s the whole point of social media posts. And that’s also part of the problem with social media.

Frankly, yoga has become deeply entrenched in the United States as a physical practice and nothing is going to change that now. We can be hopeful that those who dutifully attend yoga class, rolled up mat under the arm, will take the time to understand the depth of this ancient practice. But regardless, the flow of the class still brings peace to the mind in a way that my ‘hardcore’ workouts do not.

There are a lot of people who could benefit greatly from the practice of yoga in all its forms, matching breath to movement and developing a mind-body connection. Cancer patients and survivors are some of those people. But if all they know is that yoga demands extreme flexibility, even hypermobility, and statue-like balance, they will avoid the practice as too advanced and inaccessible to them.

If you are a teacher, please keep that in mind. If you are a potential student, please don’t let social media keep you away from such a beneficial form of exercise for both your body and your mind. And if you are a current practitioner, please dig deeper to understand the roots of yoga to honor the cultural tradition from which it arose. It’s not just for likes on Instagram.

Revisiting Radiation Tattoos

(Title image: Photo by FlyD on Unsplash)

I came across a story from November 2024 about actress Nicole Eggert (“Baywatch”, “Charles in Charge”) discussing her breast cancer diagnosis.

While I admit that I hadn’t watched any of her acting projects, I could completely relate to her reaction to preparing for radiation therapy.

The article focuses on an Instagram post that she made after leaving a doctor’s appointment during which she received her radiation tattoos, expressing surprise at the fact that they were, in fact, actual tattoos.

As the article continues, “She then started to cry as she realized just how permanent the tattoo would be. ‘And it’s minor, it’s nothing but dots, but boy, every step of this process is never gonna let you forget it, there’s just always going to be a constant reminder.’”

This really resonated with me because I had a similar reaction to getting my own radiation tattoos. I had never had an interest in getting any kind of tattoo myself. But now, with cancer, nothing was under my control anymore. It felt like my body was not my own.

Nope, never wanted a tattoo. But had to get four anyway (minus the pretty flowers).
(Photo by Lucas Lenzi on Unsplash)

And I remember being told that now I was going to get tattooed, just like that. No fanfare or anything. I don’t remember being told in advance, although I would not be surprised if I had and it simply hadn’t registered. I felt helpless a lot of the time and I had hoped that after chemo I could get a sense of self-ownership back. But the tattoos were a big “NOPE” to that!

I agree with Nicole, it’s the permanence of these things and even the long-term nature of some of the side effects of cancer treatment that add to the emotional impact of the disease.

I don’t know much about Nicole’s tattoos, but because I am pale with lots of moles already, my tattoos were blue to distinguish them from everything else on my skin. So while they were just small dots, to me they were very visible when I looked in the mirror.

My post about the experience (“I Didn’t Expect THAT: Radiation Tattoos“) talks a bit more about this. Now, almost 8 years later, I’ve made peace with the blue dots in the same way that I’ve tried to accept my scars and aches and whatever else has hung around since treatment.

Made peace, yes. But like the tattoos, although their sharpness fades, the memory remains.

Stop and Do This Now

(Title image: Photo by Ruslan Zh on Unsplash)

No matter where you are reading this, pause now and take a deep breath.

And exhale.

How did that feel? How you were breathing right before you took that breath? Were you relaxed with deep breaths already? Or was your breathing quick and shallow and that sudden deep inhale felt very different?

For me, my breath is a reflection of my internal state. It’s a compass that points me to what is happening to me, regardless of what is going on around me. Many times, I’m not aware of how I am responding to things around me until I stop to notice my breathing.

And don’t forget to exhale.
(Photo by Kelly Jean on Unsplash)

Sometimes it takes a number of tries to achieve a deep inhale. Then I realize how shallow my breaths have been. That opens the door for me to consider how I’ve been reacting to things throughout the day. And it also leads to more deeper breaths as I settle down.

If I’m home, I may grab my flute — it is a Native American-style flute of red cedar wood. Holding it in my hands, enjoying the pleasant scent of cedar, playing a few bars of a mournful melody…all that helps to calm and ground me. It demands a controlled lungful of air for a clear tone, an elongated exhale that soothes me.

Did you take a deep breath at the start of this post? If not, try it now. And notice. Notice if it’s easy for your diaphragm to drop and pull in a good lungful of air, or does your body resist, as if something is squeezing your lungs, or your torso is bound tight?

Take several more breaths and allow them to expand your ribcage, coaxing more air in with every inhale and slowly releasing with every exhale. Until, like a balloon that has been stretched, the lungs fill fully, comfortably, easily.

And then just breathe. Allow yourself to stay where you are with whatever is taking place around you and keep breathing. Breathe mindfully for few minutes. Shake off the pressures of the day.

Then take one more deep breath…and carry on.

“Them’s Fightin’ Words!”: Discussing Cancer Language

(Photo by Thao LEE on Unsplash)

Here’s something that I want to share from my Yoga4Cancer teacher training class. It’s an episode from a BBC podcast on the language that we use to talk about cancer, and it is excellent.

The podcast features a group of people touched by cancer: survivors who have finished their treatment and those who are still undergoing it. In one case, there is a woman who will never finish treatment because she needs to stay on it for the rest of her life.

Their topic of conversation circles around how they describe their situations and how they feel about the words that others use. I don’t want to give too much away because the discussion is engaging and even humorous, so I do encourage you to listen for yourselves.

BBC Radio 4 “Fighting Talk: How Language Can Make Us Better” (https://www.bbc.co.uk/programmes/m0001g8w).

I’d be really interested in knowing what your opinion on this is. Many of us might start with more aggressive talk concerning our cancer diagnoses: fight, beat, battle, etc. And yet as you’ll see, those terms can become problematic. We may get worn down by them as the treatment progresses.

How about “toxic positivity” from others? This is the tendency to push a narrative of upbeat positivity no matter what, even when it’s not appropriate to the situation. Such encouragement often ignores the tumultuous inner state of the cancer patient and can lead to a feeling of isolation

Open discussions about cancer help maintain an active support network for the diagnosed individual.
(Photo by Helena Lopes on Unsplash)

Everyone is different and as cancer survivors, we don’t expect well-meaning friends and family to know what personally irks us: for instance, there are differences between men and women in how they react to “fighting” metaphors. But it’s useful to bring a conversation like this into the open because cancer is one of those diseases that may make people around us feel uncomfortable.

A lot of people may not know what to say in response to your diagnosis, so they’ll say something vague and positive, or even nothing at all…and some may avoid you altogether. That can be unfortunate at a time where community support is especially important.

If you are currently undergoing treatment, understand that many around you might not have the vocabulary for talking about cancer in a way that resonates with you.

And if you are one of those friends who doesn’t know what to say, it can be best to admit that. Trying, “I don’t know what to say because I don’t want to say anything wrong,” can be more heartfelt and helpful than an awkwardly-cheery, “You got this!” or “Don’t give up the fight!”

I hope you enjoy the podcast episode!

An Eyeball Update…and Unfortunate Addendum

(Title image: Photo by Anastasiya Badun on Unsplash)

Last Wednesday, I had a follow-up appointment with my ophthalmologist regarding the visual migraine auras I’d experienced during the second half of last year. [Read through to the end to see what happened a few days later on Sunday.]

I had gone to see her on November 22nd after the aura frequency had increased, and at that point, imaging of my eyes revealed little hemorrhages in both eyeballs, leading my doc to fear that something was exerting pressure, eliciting auras and busting little blood vessels.

And by “something”, she meant possibly a cause as serious as a tumor.

This time around, however, the hemorrhages were gone, healed on their own. As I mentioned in a previous post, my auras had ceased too. And even my eyeballs were not looking as parched as they had before.

Everything had improved. How often does that happen?

While I expected some improvement by virtue of the fact that I was no longer experiencing visual disturbances, I was a little surprised by the complete reversal. My eyeballs looked better than they had even during my first appointment with the eye doctor some months ago.

So we talked about the effects that stress might have had on me, since I had incorporated all sorts of anti-anxiety measures. My opthalmologist is very supportive of meditation and whatever else it takes to calm oneself down. She was very relieved that there was such a marked improvement.

And this made me think about how the extra effort I’d put into being mindful, pausing during the day, increasing meditation time and the like had really paid off. Simply taking the time to look around and notice how I felt, to evaluate the pressures that I was under, to be aware and present…all of this helped me realize where there were things that I could do to change what was happening.

The concept of self-efficacy comes to mind here. Because after going through a cancer journey where everything seems out of my hands, it’s refreshing to have the experience of being able to get a positive response from lifestyle changes.

And, yes, I have to admit: I am making assumptions here. I am assuming that in fact, the visual migraine auras were caused by a pile-on of factors that included anxiety, grief and depression. I am assuming that by being more self-aware of what I was going through, engaging in holistic methods for calming myself and showing self-compassion, even the increased consumption of theobromine, all worked together to help me get a handle on the emotional storm that I’d been facing. I could be completely wrong.

But you know what? It’s not beyond the realm of possibility that all these things were exactly what I needed.

Perhaps it’s not as simplistic as taking deeper breaths. But those self-soothing techniques do not hurt.

Of course, the trick now is to not get complacent. Life is still tough, and I know that I have some challenges coming up this year. Even the greatest techniques do no good if you start cutting corners.

But after the uncertainty of last year, the pain and the loss, once again I get the satisfaction of knowing that as difficult as it seems to be, I can survive this.

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ADDENDUM

The trick now is to not get complacent. I feel like I’m eating my words.

I had felt very positive when I wrote the first draft of this post last Friday. But perhaps after almost two months of no auras, I might have assumed that I was done with them.

Yesterday (Sunday), while driving in the car, I experienced another aura. It was “milder” and a little shorter than most, but *groan* it was still an aura. My heart sank.

A few days ago I had noticed that I was experiencing that involuntary sighing reflex again. I didn’t think much of it because, hey, I had everything under control, right? I guess not.

So today my mind is more unfocused, possibly additional stress from life or anxiety over the fact that I just had another aura after things were going so well. Honestly, I don’t know which. All I know is that auras are not going to simply disappear from my life altogether. I guess I should have expected a relapse.

Darn it.

“Not Just Hot Chocolate”: Making a Cup of Cacao [VIDEO]

(Title image: Photo by Pablo Merchán Montes on Unsplash)

One of the experiences that I had in my yoga teacher training (YTT) class in early 2022 was an introduction to drinking cacao, which originated among indigenous peoples of Mesoamerica and had important sacred cultural meaning.

There’s a lot to say about cacao as it has been adopted in the West as part of spiritual introspection…or possibly exploited by practitioners who don’t fully understand its importance to the cultures from which it came. As such, google ‘ceremonial cacao’ and you will find a lot of information regarding its history on the websites of companies selling cacao. This article from Cacao Mama does a good job of providing a lot of information without immediately trying to sell you something: https://www.cacaomama.com/history-spirit/.

For this post, I want to share the process of making a cup for myself in the morning.

While cacao does have some caffeine, the main stimulant is theobromine, which is also a gentle mood-enhancer. I credit ceremonial grade cacao with being one of the things that helped me get through the visual migraine auras that I was experiencing. The extra mindfulness in making a cup of pure cacao with intention, opening up my senses to its aroma/color/taste, was soothing to me, as was knowing that I was partaking in something ancient and sacred…and of course, being bouyed by the theobromine.

For the time being, cacao has replaced my cup of macha in the morning and has provided yet another moment of calm prior to starting my workday.

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The first time I experienced a cup of cacao, I noticed an uplifted mood beyond what I expected, which lasted into the next day. If you have a chance to enjoy a cup—and can handle the stimulants and strong chocolate flavor (it’s not a Hershey bar!)—I encourage you to try it but also urge you to search for a company that treats the farmers who supply its cacao fairly and respectfully.

I have used Ora Cacao intermittently for the past few years and feel that they are honest and credible, deliver a high-quality product and care for their farmers and the Earth. I am confident that when I buy from them, I am getting the best cacao that I can find. [IMPORTANT: I am not compensated for this endorsement.]

Regrettably, due to the ever-increasing costs of purchasing pure, ethically sourced, ceremonial grade cacao, I may soon not be able to afford my morning cup, so I’ll appreciate it while I can.

“It’s Not a Toomah”: My Aura Theory

(Title image: Photo by Daniele Levis Pelusi on Unsplash)

I’ve written in my blog that I was experiencing strange visual disturbances, most likely visual migraine auras. Note: I’ve never experienced migraine pain.

This is particularly worrisome for me as a survivor of triple-positive breast cancer, as there is a greater chance of that type of cancer metastasizing to the brain. Presumably, a growing tumor could restrict blood flow to areas of the brain that could result in me seeing strange things.

This was of great concern to my ophthalmologist. However, there was no pain associated with the auras, and pain would have been expected (but not necessarily required) if the auras were caused by a tumor.

There were other confounding variables, too. Since the summer of 2024, shortly before my father’s death, I had noticed that I was doing a lot of involuntary “sighing”. I’d experienced this type of sighing before, but this time it kept going for months, sometimes occurring a number of times an hour.

Naturally I googled it, and Dr. Google pointed out that excessive sighing was potentially associated with undiagnosed anxiety and depression. When I finally started writing out all my stressors, it because obvious to me that I had been far more deeply affected by what was going on in my life than I imagined.

So, after my appointments on Nov 22, I took time to grieve my father’s death, which I hadn’t done up to then. I thought I had accepted his passing and moved on, but clearly I hadn’t. I sought hugs and solace from family members and expressed what I was feeling.

My last aura was on Nov 29th. After that, along with allowing space for grief, I expanded my time in meditation, added up to an hour of breathwork a day and even included a daily cup of ceremonial-grade cacao (for the theobromine).

Mindfulness took a front seat. I paused at various points of the day to simply take deep breaths. I paid attention to what my body was doing and what thoughts were running through my mind. I made a concerted effort to show compassion to myself, more than I had in a long time.

The auras did not come back. As of this writing, it has been 45 days since the last aura. I had been having them once a week, and at their worst, a couple a week and even two on one evening.

I am well aware of the power of the mind. My educational background is in graduate-level psychology and I myself have experienced psychosomatic pain before. But honestly, I never expected to have such a striking response to anxiety/depression/grief.

I have searched for a good visual representation of an aura and it’s hard to find one that actually reflects what I was experiencing. It was something like this:

This is not exactly what it looks like for me, as some of my auras have been “thicker” and more “stained glass-like” in color, looking more zigzagged (as if the entire half-circle is made up of triangular pieces of vividly bright LED-like colors). Also, mine were gone within about 20 minutes.

That’s not an insignificant reaction to something that is going on in my head. My brain created those auras. That is amazing.

I should mention, I never had an MRI so technically a tumor cannot be ruled out. And neither can some other cause that I have not considered. However, the fact that my auras stopped after I put concerted effort into exploring my anxiety, acknowledging depression and recognizing that I was not okay with the pressures I was under suggests that it’s probably not a tumor.

Simple Meditations: Just a Piece of the Puzzle

Over the holiday break, I indulged myself by lassoing the family into working on a couple of jigsaw puzzles that I’d been saving. It was great! And if one of your goals for 2025 is to establish a mindfulness/meditation habit, here’s a simple practice to try if you, too, enjoy jigsaw puzzles.

Putting together the puzzle itself can be a great pasttime, offering good conversation and comraderie when working with others, or proving a shift of focus when constructing solo.

However, a large multi-piece puzzle can feel overwhelming at the start, even when you’re experienced and KNOW that eventually everything will click into place.

Ah, the joy of a finished puzzle. This one is from the Ravensburger Cozy Series and is a favorite of mine. Such a great experience putting it together with family!

So here’s my suggestion. Put your puzzle together. With whatever help you need, with whomever wants to participate, no matter how long it takes. Because for this, you want to start from the end.

Now, take apart of corner of the puzzle. It’s up to you about how many pieces you will want to remove, but choose a “comfortable” amount. Twenty? Fifty? Start with fewer pieces the first time you try this.

Once you’ve deconstructed that corner, put it back together. But this time, without the “stress” of doing the whole thing. This will be easy. You know that it’s only a handful of pieces. So simply enjoy the process.

The deconstructed corner turns putting the puzzle together into an meditative exercise. The focus is on contemplation, not completion. Enjoy the satisfaction of the clicking the pieces into place.

Perhaps find the edge pieces and create the frame, or simply build out the puzzle from the “raggedly” edges of the puzzle. There is no single “right” way to do this. What is important is that you breathe through the process. Picking up a piece, focusing on its qualities, seeing where it belongs. Either clicking it in or putting it back down and picking up another piece until you find the one that will go where you want it to.

Notice the sensations: the feeling of the puzzle piece in your hand, its shape and color, the texture of the interlocking sides, even the smell of the cardboard all work together to bring you back to the present moment.

The goal is contemplation, not completion. When you’ve put all the pieces together…do it again with another corner. You get the satisfaction of clicking the pieces into place without the fleeting stress of “omg, where do I start?” In turn, this provides you the opportunity to get absorbed in the process.

What a lovely way to meditate.

The Gift of Self-Care

(Title image: Photo by Ben White on Unsplash)

I’m popping in here with a little reminder to practice self-care over the remainder of this holiday season and springboard that care into the new year.

“I have had no time for self-care with everything going on!”, you may protest, but then, what do you imagine self-care to be?

If you believe commercials, it’s drinking red wine in the bathtub, eating ice cream from the container, using a face mask and getting your nails done at a salon. All while chanting, “BECAUSE I’M WORTH IT!”

In general, anyone who is perpetuating that type of “self-care” is trying to sell you something.

Journaling is an effective form of self-care and doesn’t require an expensive journal or pen, no matter what someone tries to sell you.
(Photo by Sixteen Miles Out on Unsplash)

Here are less expensive options that I feel align more closely with the true meaning of self-care:
* pausing during the day to take a few mindful breaths;
* noticing where you are (“Right now, I am in the kitchen doing the dishes, feeling the warm water and slipperiness of the soap on my hands”) to help calm racing thoughts;
* making a decision to choose a more nourishing food, eating slowly, savoring each bite;
* decreasing/eliminating alcohol — substitute a drink that looks festive (sprig of rosemary or a skewered piece of fruit added to sparkling water);
* staying consistent with exercise, or if time is squeezed, sticking in extra movement whereever you can (like doing 5 squats every time you go to the bathroom or a short yoga session right before bed);
*practicing gratitude, and if that’s hard, just finding something to appreciate.

And of course, taking time for a brief meditation whenever you can.

I think you get the idea.

Holiday self-care is not about buying things. It’s not about practicing an Instagram or TikTok version of indulgence. There are no photos to post and you don’t need a manual for it to be beneficial.

It is taking a break to drop down out of your thoughts and into the present moment. Be kind to your body and mind, get enough sleep and exercise to make yourself feel good. And importantly: release expectations of what you think the holiday should look like, how people should act, what you should be able to accomplish, even how you should feel about it. Find appreciation for whatever is going well.

I wish you a peaceful, positive start to 2025!