An Eyeball Update…and Unfortunate Addendum

(Title image: Photo by Anastasiya Badun on Unsplash)

Last Wednesday, I had a follow-up appointment with my ophthalmologist regarding the visual migraine auras I’d experienced during the second half of last year. [Read through to the end to see what happened a few days later on Sunday.]

I had gone to see her on November 22nd after the aura frequency had increased, and at that point, imaging of my eyes revealed little hemorrhages in both eyeballs, leading my doc to fear that something was exerting pressure, eliciting auras and busting little blood vessels.

And by “something”, she meant possibly a cause as serious as a tumor.

This time around, however, the hemorrhages were gone, healed on their own. As I mentioned in a previous post, my auras had ceased too. And even my eyeballs were not looking as parched as they had before.

Everything had improved. How often does that happen?

While I expected some improvement by virtue of the fact that I was no longer experiencing visual disturbances, I was a little surprised by the complete reversal. My eyeballs looked better than they had even during my first appointment with the eye doctor some months ago.

So we talked about the effects that stress might have had on me, since I had incorporated all sorts of anti-anxiety measures. My opthalmologist is very supportive of meditation and whatever else it takes to calm oneself down. She was very relieved that there was such a marked improvement.

And this made me think about how the extra effort I’d put into being mindful, pausing during the day, increasing meditation time and the like had really paid off. Simply taking the time to look around and notice how I felt, to evaluate the pressures that I was under, to be aware and present…all of this helped me realize where there were things that I could do to change what was happening.

The concept of self-efficacy comes to mind here. Because after going through a cancer journey where everything seems out of my hands, it’s refreshing to have the experience of being able to get a positive response from lifestyle changes.

And, yes, I have to admit: I am making assumptions here. I am assuming that in fact, the visual migraine auras were caused by a pile-on of factors that included anxiety, grief and depression. I am assuming that by being more self-aware of what I was going through, engaging in holistic methods for calming myself and showing self-compassion, even the increased consumption of theobromine, all worked together to help me get a handle on the emotional storm that I’d been facing. I could be completely wrong.

But you know what? It’s not beyond the realm of possibility that all these things were exactly what I needed.

Perhaps it’s not as simplistic as taking deeper breaths. But those self-soothing techniques do not hurt.

Of course, the trick now is to not get complacent. Life is still tough, and I know that I have some challenges coming up this year. Even the greatest techniques do no good if you start cutting corners.

But after the uncertainty of last year, the pain and the loss, once again I get the satisfaction of knowing that as difficult as it seems to be, I can survive this.

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ADDENDUM

The trick now is to not get complacent. I feel like I’m eating my words.

I had felt very positive when I wrote the first draft of this post last Friday. But perhaps after almost two months of no auras, I might have assumed that I was done with them.

Yesterday (Sunday), while driving in the car, I experienced another aura. It was “milder” and a little shorter than most, but *groan* it was still an aura. My heart sank.

A few days ago I had noticed that I was experiencing that involuntary sighing reflex again. I didn’t think much of it because, hey, I had everything under control, right? I guess not.

So today my mind is more unfocused, possibly additional stress from life or anxiety over the fact that I just had another aura after things were going so well. Honestly, I don’t know which. All I know is that auras are not going to simply disappear from my life altogether. I guess I should have expected a relapse.

Darn it.

All I Want for Christmas is No More Auras

(Title image: Photo by Brian Suh on Unsplash)

This was supposed to be a post for USA residents about how to find some harmony during the Thanksgiving holiday amidst the tensions brought by relatives with strongly differing views of the world. Such disagreements are always a possibility when families get together, but likely even worse this year.

But, no. Instead, I’m sitting here wearing sunglasses in a darkened room as I plink out this post.

Remember those shimmering scythe-shaped mosaics (auras) that I wrote about intruding on my vision some weeks ago? The ones that are associated with ocular migraines, but in my case minus any headache? Well, they’re still happening and with greater frequency.

Depending on which of my healthcare professionals you talk to, they either want to (1) wait and see how things progress or (2) shove me into an MRI tube ASAP.

And me? I really want to not be dealing with this issue. After seven years of putting a lot of space between my cancer diagnosis and the present moment, I am getting stressed by the possibility of this being something quite serious. And all I wanted was to enjoy the upcoming holiday season.

But I’m getting ahead of myself. Here are the details: I’ve now had seven of these episodes in about two months—I’m not even sure when the very first one was. After the last one (which was the second of two last week), I left a message with my ophthalmologist.

However, it was my oncologist who happened to call a few hours later, completely coincidentally, to give me unrelated scan results.

So, since I had him on the line, I told him about the auras. He sounded sad. And you know what? You never want your oncologist to sound sad, especially when they’re usually so good at being neutral when delivering news.

And then my ophthalmologist called back late that afternoon, urging me to see my primary care doctor as soon as possible and also schedule an appointment with her for the next day.

Next day, I snag a morning appointment with my primary care provider, explain the situation and the fact that I have no other symptoms other than the auras. Her take: this is very weird, yes…but it’s a hard sell to get this to qualify for an MRI at this time, even with the frequency. With my consent, she wanted to wait for a little bit and see whether the auras continued.

Or, I guess, until my head exploded or something.

Find a happy place, find a happy place, find a happy place…
(Photo by serjan midili on Unsplash)

When I saw my ophthalmologist that afternoon, she was extremely concerned and incredulous that an MRI wasn’t the first course of action. I could tell that she felt waiting was a bad idea.

But ultimately, she acquiesed to the notion that we’ll wait, although she’s sending a synopsis of her findings to my primary. She instructed me to take excruciatingly detailed notes the next time one of these auras occurs

And if you’re still reading this far down and are convinced that my goose is cooked, maybe it isn’t. Sure this whole experience is stressing me out. But there are far too many confounding variables present to resign myself to the fact that I’ll be getting my head shaved again soon…variables which I might be writing about in a future post…

…or I’ll be talking about my ride in the MRI tube and subsquent diagnosis.

But for now, I’m going to rest my eyes in a darkened room and think of silky fur on a contentedly purring kitten.

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For everyone in the USA, have a wonderful Thankgiving with your lovely families this Thursday…and let’s all try to keep it civil.