Tag: Migraine Aura

An Eyeball Update…and Unfortunate Addendum

(Title image: Photo by Anastasiya Badun on Unsplash)

Last Wednesday, I had a follow-up appointment with my ophthalmologist regarding the visual migraine auras I’d experienced during the second half of last year. [Read through to the end to see what happened a few days later on Sunday.]

I had gone to see her on November 22nd after the aura frequency had increased, and at that point, imaging of my eyes revealed little hemorrhages in both eyeballs, leading my doc to fear that something was exerting pressure, eliciting auras and busting little blood vessels.

And by “something”, she meant possibly a cause as serious as a tumor.

This time around, however, the hemorrhages were gone, healed on their own. As I mentioned in a previous post, my auras had ceased too. And even my eyeballs were not looking as parched as they had before.

Everything had improved. How often does that happen?

While I expected some improvement by virtue of the fact that I was no longer experiencing visual disturbances, I was a little surprised by the complete reversal. My eyeballs looked better than they had even during my first appointment with the eye doctor some months ago.

So we talked about the effects that stress might have had on me, since I had incorporated all sorts of anti-anxiety measures. My opthalmologist is very supportive of meditation and whatever else it takes to calm oneself down. She was very relieved that there was such a marked improvement.

And this made me think about how the extra effort I’d put into being mindful, pausing during the day, increasing meditation time and the like had really paid off. Simply taking the time to look around and notice how I felt, to evaluate the pressures that I was under, to be aware and present…all of this helped me realize where there were things that I could do to change what was happening.

The concept of self-efficacy comes to mind here. Because after going through a cancer journey where everything seems out of my hands, it’s refreshing to have the experience of being able to get a positive response from lifestyle changes.

And, yes, I have to admit: I am making assumptions here. I am assuming that in fact, the visual migraine auras were caused by a pile-on of factors that included anxiety, grief and depression. I am assuming that by being more self-aware of what I was going through, engaging in holistic methods for calming myself and showing self-compassion, even the increased consumption of theobromine, all worked together to help me get a handle on the emotional storm that I’d been facing. I could be completely wrong.

But you know what? It’s not beyond the realm of possibility that all these things were exactly what I needed.

Perhaps it’s not as simplistic as taking deeper breaths. But those self-soothing techniques do not hurt.

Of course, the trick now is to not get complacent. Life is still tough, and I know that I have some challenges coming up this year. Even the greatest techniques do no good if you start cutting corners.

But after the uncertainty of last year, the pain and the loss, once again I get the satisfaction of knowing that as difficult as it seems to be, I can survive this.

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ADDENDUM

The trick now is to not get complacent. I feel like I’m eating my words.

I had felt very positive when I wrote the first draft of this post last Friday. But perhaps after almost two months of no auras, I might have assumed that I was done with them.

Yesterday (Sunday), while driving in the car, I experienced another aura. It was “milder” and a little shorter than most, but *groan* it was still an aura. My heart sank.

A few days ago I had noticed that I was experiencing that involuntary sighing reflex again. I didn’t think much of it because, hey, I had everything under control, right? I guess not.

So today my mind is more unfocused, possibly additional stress from life or anxiety over the fact that I just had another aura after things were going so well. Honestly, I don’t know which. All I know is that auras are not going to simply disappear from my life altogether. I guess I should have expected a relapse.

Darn it.

“It’s Not a Toomah”: My Aura Theory

(Title image: Photo by Daniele Levis Pelusi on Unsplash)

I’ve written in my blog that I was experiencing strange visual disturbances, most likely visual migraine auras. Note: I’ve never experienced migraine pain.

This is particularly worrisome for me as a survivor of triple-positive breast cancer, as there is a greater chance of that type of cancer metastasizing to the brain. Presumably, a growing tumor could restrict blood flow to areas of the brain that could result in me seeing strange things.

This was of great concern to my ophthalmologist. However, there was no pain associated with the auras, and pain would have been expected (but not necessarily required) if the auras were caused by a tumor.

There were other confounding variables, too. Since the summer of 2024, shortly before my father’s death, I had noticed that I was doing a lot of involuntary “sighing”. I’d experienced this type of sighing before, but this time it kept going for months, sometimes occurring a number of times an hour.

Naturally I googled it, and Dr. Google pointed out that excessive sighing was potentially associated with undiagnosed anxiety and depression. When I finally started writing out all my stressors, it because obvious to me that I had been far more deeply affected by what was going on in my life than I imagined.

So, after my appointments on Nov 22, I took time to grieve my father’s death, which I hadn’t done up to then. I thought I had accepted his passing and moved on, but clearly I hadn’t. I sought hugs and solace from family members and expressed what I was feeling.

My last aura was on Nov 29th. After that, along with allowing space for grief, I expanded my time in meditation, added up to an hour of breathwork a day and even included a daily cup of ceremonial-grade cacao (for the theobromine).

Mindfulness took a front seat. I paused at various points of the day to simply take deep breaths. I paid attention to what my body was doing and what thoughts were running through my mind. I made a concerted effort to show compassion to myself, more than I had in a long time.

The auras did not come back. As of this writing, it has been 45 days since the last aura. I had been having them once a week, and at their worst, a couple a week and even two on one evening.

I am well aware of the power of the mind. My educational background is in graduate-level psychology and I myself have experienced psychosomatic pain before. But honestly, I never expected to have such a striking response to anxiety/depression/grief.

I have searched for a good visual representation of an aura and it’s hard to find one that actually reflects what I was experiencing. It was something like this:

This is not exactly what it looks like for me, as some of my auras have been “thicker” and more “stained glass-like” in color, looking more zigzagged (as if the entire half-circle is made up of triangular pieces of vividly bright LED-like colors). Also, mine were gone within about 20 minutes.

That’s not an insignificant reaction to something that is going on in my head. My brain created those auras. That is amazing.

I should mention, I never had an MRI so technically a tumor cannot be ruled out. And neither can some other cause that I have not considered. However, the fact that my auras stopped after I put concerted effort into exploring my anxiety, acknowledging depression and recognizing that I was not okay with the pressures I was under suggests that it’s probably not a tumor.