October 2024 – Frantic Shanti

Lucy in the Sky with Diamonds: And Now…My Eyes?

^{(Title image: Photo by Adam Gonzales on Unsplash)}

So one of the hardest things for me about having cancer was losing a sense of security. Suddenly my body was out to get me, without my knowledge, while I was basking in a false sense of security that everything was okay.

Dealing with uncertainty is tough. It made me painfully aware of my own mortality before I was ready for it. It was as if cancer became my midlife crisis.

But it wasn’t just that I had to deal with not having guarantees about my own health (I mean, do we ever really have that?), about cancer not bothering me again. It also brought uncertainty about whether strange feelings in my body meant something.

I got to a point where I was afraid of anything, real or imagined, that I felt in my body. And after doing that for a while and completely exhausting myself, I called it quits and stopped running to the doctor for every little thing.

But now…I’m wondering if I’m kidding myself?

About a week ago, I had a weird thing happen. I was shopping at a market with my daughter. We were almost done when I noticed a funny change in my vision.

This wasn’t what I saw, but the colors were just as bright and vibrant.
(Photo by Randy Bayne on Unsplash)

I started seeing rings, the best way I can describe them is as if they were stained glass rings of vibrant colors, like an OLED screen, kind of like what you might see in a beautiful kaleidoscope. They were noticible, but didn’t take over all of my visual field. And YES, they were freaky. The entire show lasted about 20 minutes and primarily affected my left eye.

Then they faded away.

At that point, I recalled that I had experienced something similar, but without the vibrant colors, a few months ago. Again, I had been at a store and noticed a funny change in my vision, zigzagged lines.

That time it also didn’t last very long. Neither one of these episodes was associated with headaches.

Now we have a situation.

My oncologist always asks about visual disturbances, like seeing things that aren’t there, shadows, headaches, severe loss of balance. As a triple positive breast cancer survivor, I know this is because of possible metastases to the brain.

But instead of calling him last week to tell him what happened, I paused. I had done some research on the internet about these types of phenomena, and it’s quite possible that I’m experiencing ocular (acephalgic) migraines…again, without the headache. I’ll have to see if those rings/zigzags happen again, but at this point, with the amount of upheaval that I’ve experienced over the past few months (including the death of a parent)…and the fact that both times these visual oddities happened in stores with bright overhead lighting, well, let’s just say “brain tumor” doesn’t strike me as the most likely cause.

Yes, yes, yes, I will reach out to my oncologist this week. Probably, maybe. And if I do, I will ask to wait before being required to take another ride in the MRI tube. I’ve learned that at times like this, it is best to take a breath, stay present and wait for more information before proceeding.

“Ask Me Anything”: Streaming on Twitch

^{(Title image: Photo by Clay Banks on Unsplash)}

Well, I tried a thing…

In honor of Breast Cancer Awareness Month, I decided to try an “Ask Me Anything” stream on a streaming platform called Twitch.

Twitch is primarily a game streaming platform although there are also art streams, animal streams, science streams and a variety of other worthwhile (and some not-so-worthwhile) streams.

I’ve streamed video games there before—because after cancer, playing horror games in virtual reality is not as scary—so I was familiar with the workings. Additionally, with progressively more younger women getting diagnosed with breast cancer, I felt that it was appropriate to reach out to a younger community.

I wanted to give people a chance to ask questions about the breast cancer experience that they might not feel comfortable asking someone they know who has the disease. This was based on my own experience decades ago; a fellow student was diagnosed, and suddenly I wasn’t sure how to talk to her. I didn’t want to say the “wrong” thing, afraid that I might upset her or otherwise “remind” her about her cancer, as if she had forgotten.

All this was, of course, ridiculous, because she herself was very open about the disease and talked about it to us freely. She’d let us know how it was going, sometimes came to class wearing only a hat on her bald head, never showing any indication that speaking about cancer made her uncomfortable.

The issue wasn’t my friend, it was me, and I honestly didn’t give her as much support as I could have. I probably looked like I was pulling away but the reality was that I just didn’t know how to speak to her for fear of hurting her.

I’m here to answer all those questions that people don’t feel comfortable asking…but want to know the answer to.
(Photo by 愚木混株 cdd20 on Unsplash)

There were questions that I could have engaged her with like, “how sick do you get from chemotherapy”, “what does your treatment plan look like”, “what type of breast cancer do you have”, “what are you looking forward to most when you’re done?”

Additionally, I wondered about things like, “what is the survival rate for your cancer”, that I would have never asked her for fear of really being inappropriate. But I was still curious (keep in mind, this was prior to widespread usage of the World Wide Web/Internet, so I couldn’t google the info).

All of those questions are the ones that I wanted to be available to answer on my stream. If you’ve been reading my blog posts, you probably know a lot about my own situation. I’m not shy about sharing.

But a person with a co-worker who was recently diagnosed, like my younger self, might not want to ask them.

So, I gave the Q&A session a try…to a whopping zero viewers. And that was okay because I wasn’t sure how it would go. I talked almost non-stop about what my breast cancer experience was like. It was cathartic to be sure and I was surprised that I was able to speak for as long as I did. Eventually, my throat started to hurt (water? I’m supposed to drink water?) and I called it a day.

It was also a touch out of my comfort zone. I feel like I need to do something useful with my life and I’m running out of time. This stream is one way to shake myself up at the age of 58 and get used to taking risks again. Ouch.

Just for kicks, I’ll be posting the unedited video that I created from the Q&A session although I admit, it took a bit for me to get going so it’s very stream-of-consciousness. I’m still in the process of uploading it, but will post it once that’s all done.

I’m tentatively planning to do this again next Saturday morning at ~9am PDT, assuming my voice recovers by then. If you’re interested it taking a look, you will be able to access the stream here: https://www.twitch.tv/franticshanti.

Rappeling Down through the Strata: A Grounding Exercise

^{(Title image: Photo by Outward Bound Costa Rica on Unsplash)}

It’s been a very weird few weeks for me. My stress levels have been climbing, and while I can kind of, sort of point to certain anxiety-provoking events that might be responsible…there’s nothing truly significant that would elicit this type of response.

Regardless, I’ve been spending more time in the “higher strata” of myself, and I don’t mean this in a good sense. Another way of putting it is that I’m all up in my own head, bouncing around and being pummeled by all sorts of thoughts, expectations, fears, unreasonable beliefs and the like.

Oooo, there I am, stuck in my own head.
(Photo by Taylor Brandon on Unsplash)

Usually I know when this is happening, but this time I was too preoccupied with the worries of those around me that I didn’t notice myself drift up and stake a camp in the swamp of my mind.

Even my meditations tended to get stuck up there. Time to rappel down.

I get myself down this way: first by acknowledging the mess that I’m dealing with in my head, the rainstorm whipping up swirling thoughts. Not all my concerns are unreasonable, but they are pointless to get hung up on in this moment.

Next, I focus on the noise on the street outside (there is always noise on our street, but the longer I listen, the greater chance that I’ll hear a bird or other wildlife sounds). I bring my attention out to the expanse around me—getting out of the cramped space between my ears.

That’s a nice break. But I can’t ignore myself forever. So I feel into the sensations on my face: the feeling of the air (hot or cool), noticing the weight of my glasses on my nose, perhaps an itch on the scalp or cheek.

And here I go, rappeling down to a place where I can ground myself and return to the present moment.
(Photo by Ben Kitching on Unsplash)

Then I drop down to my neck and shoulders, giving them a roll as I go, and then towards my chest. Here I pause and bring focus to my breathing. Usually that results in an automatic slowing of the breath, as I notice my ribs expand and contract.

But after a brief stay I rappel down and out more quickly, into my hands and feet. Noticing how my hands feel on whatever surface they lie. And how my feet feel against the earth.

I imagine that my feet are part of the bedrock, joining the rest of the Earth’s crust. Connected and solid, forming a stable base.

And from down here, I look back up to where those clouds around my head were bringing furious rain, and they seem so far away. I’m peaceful and unruffled here on the ground. Down here is what’s really happening in the present, without being affected by the past and future. And what’s happening is just what’s happening, neither good nor bad.

Taking a deep breath, maybe a yawn, I stretch my body out the way I do when waking from a long sleep, enjoying the slight shiver of the muscles.

And then, on to the rest of my day a little bit calmer.

“The Resilience Challenge”: Research Study and Master Class Registration

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This is a time-sensitive opportunity for US residents!

NOTE: all links are described at the bottom of this post.

I unexpectedly came across a great opportunity for those of you interested in taking a master class in stress management and also participating in a large research study.

Dr. Judith Moskowitz, a research psychologist at Northwestern University’s Feinberg School of Medicine, is recruiting 20,000 participants for an online, self-guided, positive emotions study/class. The course will teach eight science-backed stress reduction skills over 5 weeks, with the 6th week being a practice and review period (the entire length of the study will be 12 weeks). The skills being taught involve the following (from this National Public Radio (NPR) article):

Positive Events
Savoring
Gratitude
Daily Mindfulness
Positive Reappraisal
Self-Compassion
Personal Strengths
Attainable Goals

Additionally, NPR has an accompanying 5-week newsletter series called Stress Less that will help reinforce these skills. Signing up for that can be done here.

This other article from NPR talks about both the newsletter and the study/class.

More information and the registration link can be found on Dr. Moskowitz’s site where she describes what’s involved. To participate, you must be over the age of 18, living in the United States and have reliable internet connectivity as this is 100% online. There will be questionnaires to complete about your emotional states at the beginning and end of the study, and you will get nightly homework.

Consistency is the way to grow positive skills and behaviors, which is why I’m looking forward to participating in this class.
(Photo by Jane Thomson on Unsplash)

While the “nightly homework” thing might seem like too much, I can personally attest to the fact that consistency is what strengthens skills and habits. You keep yourself accountable by committing to a daily practice. For me, knowing that a course is set up for working on a little every day is actually quite reassuring—I know I’m more likely to get results.

But do these skills really work in reducing stress? Dr. Moskowitz herself said that she was initially skeptical that skills like these would make an appreciable difference, but years of positive research results changed her mind. The idea is to train your brain to experience good feelings.

I love programs like this because the only cost is a little effort on your part. If it doesn’t seem to work for you, you haven’t lost much, but if it works, the rewards can be life-changing.

As a cancer survivor with anxious tendencies, I find this to be a win-win proposition. I have signed up, as have several members of my family. If you are interested, don’t wait! The study is limited to the first 20,000 registrants and when the original NPR story came out on Monday, September 30th, the response was so overwhelming that it effectively shut the regstration site down.

Registration resumed on October 2nd and as far as I know there are still spaces available.

But the enthusiastic initial response to the invitation to join in the research was quite telling. So many of us are looking for a way to reduce our stress levels and bring more positivity into our lives. This challenge is one more way to do that.

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Links with descriptions:

NPR audio story featuring the Resilience Challenge: https://www.npr.org/sections/shots-health-news/2024/09/27/nx-s1-5082364/anxiety-stress-positive-coping-class-skills

NPR article featuring the Stress Less newsletter and Resilience Study: https://www.npr.org/sections/shots-health-news/2024/09/28/nx-s1-5084630/anxiety-stress-relief-tips-strategies

The Resilience Challenge registration information and link: https://www.moskowitzlab.com/resilience

NPR Stress Less newsletter sign up: https://www.npr.org/newsletter/stress-less?&utm_campaign=hpstory